125. Akiva Zablocki, Helping Families with Hyper IgM Find Community and Care

Made Visible

Akiva Zablocki is a former healthcare consultant and the founder of the Hyper IgM foundation. When Akiva’s son Idan was just eight months old, he was diagnosed with Hyper IgM, an incredibly rare genetic mutation that severely compromises the immune system. After three years of diligent research and advocacy, Akiva and his wife were able to obtain a life-saving bone marrow transplant for Idan.

Through this experience, Akiva connected with other Hyper IgM patients and their families all around the world, as well as many doctors and immunologists working to help those patients. This growing community led Akiva to found the Hyper IgM Foundation, which has become a much-needed way for patients and families to connect and share resources that were previously so difficult to find for such a rare illness. Akiva continues to work tirelessly to support his fellow Hyper IgM families and help them feel less alone.

For more information about Akiva Zablocki and his family’s journey, visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

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