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Navigating Independence with PKU with Maridith, Lauren, and Abigaill
Manage episode 350195410 series 3406993
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Welcome back to another episode of Insightful Moments: My VIBE, presented by PTC Therapeutics. In this episode, Paula Orandash attended the National PKU Alliance Challenge the Summit 2022 Conference in Vancouver where she spoke to many individuals affected by Phenylketonuria (PKU). PKU affects the body’s ability to metabolize proteins. It requires a strict monitoring of diet, but has many other challenges and nuances as well. You’ll hear from Maridith about how she navigates college and deals with her PKU symptoms. You’ll also hear from Lauren about how her definition and explanation of PKU has changed from when she was in college to today. And you’ll hear from Abigaill, who was diagnosed with PKU at birth, about how the information given to parents upon diagnosis has greatly improved over the years. Join us for another wonderful episode of Insightful Moments: My VIBE, brought to you by PTC Therapeutics.
For more information, visit the Insightful Moments website at www.PTCinsightfulmoments.com.
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