A(z) Macular csatorna legjobb podcastjai (2024)

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Bitesize Benefits: Working with sight loss 49:13

17d ago49:13

49:13

Send us your feedback In this episode of Bitesize Benefits Emma and Colin are joined by Zsuzsi Szabo, Employment Manager at Support4Sight Essex, as they explore the world of employment for those living with sight loss. Listen as they discuss disclosing sight loss to an employer and the benefits of applying for an Access to Work grant. This is part …

1
Bitesize Benefits: Job hunting with sight loss 42:27

1M ago42:27

42:27

Send us your feedback In this episode of Bitesize Benefits Emma and Colin are joined by Zsuzsi Szabo, Employment Manager at Support4Sight Essex, as they explore the world of employment for those living with sight loss. Listen as we share our key tips job searching, volunteering, job applications and CV writing. This is part of our Bitesize Benefits…

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Potential treatments for Doyne honeycomb retinal dystrophy 35:17

2M ago35:17

35:17

Send us your feedback In this episode of the My Macular and Me podcast we are joined by Professor Jacqueline van der Spuy from the UCL Institute of Ophthalmology. She discusses the development of treatments for Doyne honeycomb retinal dystrophy, an inherited juvenile macular dystrophy affecting sight from early adulthood. The Macular Society has be…

1
How smart devices can help you with sight loss 31:47

2M ago31:47

31:47

Send us your feedback In this episode of the My Macular and Me podcast, we are joined by Hannah Keegan, programmes manager at the Macular Society, and Connect by Tech volunteer Sheila Harris. Join us as we explore the world of smart devices and find out how technology can make life a little bit easier for those living with sight loss. The Macular S…

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The gene editing research seeking a Stargardt treatment 35:52

3M ago35:52

35:52

Send us your feedback In this episode of the My Macular and Me podcast, Elena Piotter, a PhD student at the University of Oxford, discusses her research project into a gene editing technique called CRISPR and how it could lead to a treatment for Stargardt disease. Her research is co-funded by the Macular Society and Retina UK. The Macular Society h…

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What is an ECLO and how can they support you? 39:22

3M ago39:22

39:22

Send us your feedback For this My Macular and Me podcast we are joined by Ruth Rhydderch, an ECLO at the University Hospital of Wales. She joined us to discuss her role has an ECLO and she shares her top pieces of advice. Eye clinic liaison officers (ECLOs) offer advice on how to lessen the impact your eye condition may have on your life. The Macul…

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What is X linked retinoschisis? 25:22

4M ago25:22

25:22

Send us your feedback For this My Macular and Me podcast, we welcome Professor Andrew Lotery from the University of Southampton. He explores the rare macular condition called X linked retinoschisis. The condition is one of a number of inherited retinal diseases the Southampton team is researching. Professor Lotery provides an update on research int…

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Latest updates in myopic macular degeneration 53:08

4M ago53:08

53:08

Send us your feedback Dr Annegret Dahlmann-Noor, who is director of the children's service at Moorfields Eye Hospital, joins our My Macular and Me podcast to talk about myopic macular degeneration (MMD). As well as the condition itself, Dr Dahlmann-Noor will discuss its prevalence, as well as her latest research into the condition on how to slow my…

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Bitesize Benefits: Attendance Allowance application and decision 28:04

5M ago28:04

28:04

Send us your feedback Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our mini series Bitesize Benefits will cover a range of topics related to financial and workplace support for those living with macular disease. This episode is our final episode focused on Atten…

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Bitesize Benefits: What is Attendance Allowance and how do I apply? 42:54

5M ago42:54

42:54

Send us your feedback Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our mini series Bitesize Benefits will cover a range of topics related to financial and workplace support for those living with macular disease. This episode is part one of two, focused on Attend…

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Trains, planes and automobiles 44:31

6M ago44:31

44:31

Send us your feedback For most, taking public transport is done without much thought or stress. But, sight loss can have a huge impact on the relative ease with which most people travel. For this My Macular and Me podcast we are joined by Pete Lock, national habilitation lead at Guide Dogs, who shares his own experiences of travelling across the UK…

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Bitesize Benefits: Spring Budget 31:05

6M ago31:05

31:05

Send us your feedback Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our new mini series Bitesize Benefits will cover a range of topics related to financial and workplace support for those living with macular disease. Join us as we look at the recent Spring Budget…

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Understanding gene mutations in childhood eye disease 39:14

7M ago39:14

39:14

Send us your feedback Researcher Roly Megaw, a clinical lecturer and honorary consultant ophthalmologist from the University of Edinburgh and West Lothian joins us for this episode of the podcast. Roly will be shedding light on the devastating impact of RPGR gene mutations, which can cause macular and cone rod dystrophies. Join us as he unveils dis…

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Bitesize Benefits: PIP assessment and decision 33:45

7M ago33:45

33:45

Send us your feedback Join us for our final episode on Personal Independence Payment (PIP) in our Bitesize Benefits series. In this episode we explore the final stages of the application, unravelling the assessment process and possible outcomes. This episode is the final in three, focused on Personal Independence Payment (PIP). For more information…

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Bitesize Benefits: The ins and outs of a PIP application 37:52

8M ago37:52

37:52

Send us your feedback Join us for the second episode in our Bitesize Benefits series as we continue our exploration of Personal Independence Payment (PIP). We take a look at the application process and uncover valuable tips to help you with your claim. This episode is the second of three, focused on Personal Independence Payment (PIP). Join us as w…

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Bitesize Benefits: What is PIP and how do I apply? 24:01

8M ago24:01

24:01

Send us your feedback Living with sight loss may entitle you to extra financial support to help with day-to-day costs, but do you know what you can claim? Our new mini series Bitesize Benefits will cover a range of topics related to financial and workplace support for those living with macular disease. This episode is the first of three, focused on…

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What causes photopsia and photophobia in patients with Stargardt? 44:51

9M ago44:51

44:51

Send us your feedback Flashing lights in vision (photopsia) or discomfort due to bright light or glare (photophobia) is often experienced by patients with Stargardt. However, little is understood about what causes these symptoms, their prevalence or the impact they can have on people’s lives. Omar Mahroo, consultant ophthalmologist and professor of…

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When and why are lasers used to treat patients with retinal conditions? 47:54

9M ago47:54

47:54

Send us your feedback Dr Liam Sullivan, consultant ophthalmologist at Cambridge University Hospital, joins My Macular and Me to discuss lasers as treatment for patients with retinal conditions, such as diabetic retinopathy and retinal vein occlusion. The Macular Society has been supporting people with macular conditions for over 30 years. The right…

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Latest advances in genomics for inherited retinal disease 42:14

10M ago42:14

42:14

Send us your feedback Gavin Arno, senior scientist and researcher from the department of genetics at Moorfields Eye hospital joins us for this episode of the My Macular and Me podcast. Gavin joins us to discuss the latest advances in genomics for inherited retinal disease. Our understanding of genetics and how DNA works has grown considerably in th…

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How can job seekers with macular disease overcome barriers to employment? 49:15

10M ago49:15

49:15

Send us your feedback For this episode of the My Macular and Me podcast, we are joined Zsuzsi Szabo, an employment manager from Support4Sight in Essex, and Gary Hawkins from Cadent Gas, along with Lee Mercer, who is living with sight loss and is sharing his experience with employment. They discuss the barriers that employers encounter when thinking…

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The emotional support available for those living with macular disease 45:05

11M ago45:05

45:05

Send us your feedback Suzanne Roberts from the Macular Society Counselling service joins Colin Daniels for this episode of the My Macular and Me podcast. We are also joined by Lesley who was diagnosed with macular disease and began using our counselling service when she felt she was at her lowest. This episode looks at the emotional impact of a dia…

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ECLOs and registering as sight impaired 16:04

11M ago16:04

16:04

Send us your feedback For this episode of the My Macular and Me podcast we are joined an Eye Care Liaison Officer (ECLO). and a rehabilitation officer as they discuss their roles in supporting people with sight loss. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can help …

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New laser treatment for diabetic macular oedema (DMO) 45:58

12M ago45:58

45:58

Send us your feedback For this My Macular and Me podcast we were joined by professor of ophthalmology, Noemi Lois, from Queen's University Belfast. She looks at the results of a recent trial for patients with diabetic macular oedema (DMO). The trial set out to test two types of laser for treating patients with DMO, one standard laser, which has bee…

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What is sorsby fundus dystrophy? 36:54

1y ago36:54

36:54

Send us your feedback Professor Andrew Lotery from the University of Southampton joins this episode of the My Macular and Me podcast to talk to us about sorsby fundus dystrophy. For further information on sorsby fundus dystrophy please visit our website: https://www.macularsociety.org/macular-disease/macular-conditions/sorsby-fundus-dystrophy/ The …

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BrightPage: a tool to help you read with macular disease 33:03

1y ago33:03

33:03

Send us your feedback Howard Moshtael, joins us for this episode of the My Macular and Me podcast to discuss his reading tool, BrightPage. Whilst doing his PhD at Edinburgh University, Howard learnt that reading with central vision loss is easier if you don’t have to move your eyes. His idea was to find a tool which can scroll text in a natural way…

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An insight into the Macular Society research team 41:27

1y ago41:27

41:27

Send us your feedback Macular Society's research manager Geraldine Hoad and research officer Sarah Clinton join us for this episode of the My Macular and Me podcast to give an overview of the team and bring an update on the latest developments in macular research. The Macular Society has been supporting people with macular conditions for over 30 ye…

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How effective are techniques to manage visual hallucinations? 35:29

1y ago35:29

35:29

Send us your feedback Professor Robin Walker joins us for this episode of the My Macular and Me podcast to discuss his team's study on the effectiveness of recommended techniques to manage visual hallucinations caused by sight loss. Do you suffer with visual hallucinations caused by Charles Bonnet syndrome? The Macular Society runs a CBS support gr…

1
Inherited macular disease - Should I know my gene? 41:14

1y ago41:14

41:14

Send us your feedback Professor Andrew Webster and genetic counsellor Hannah Knight join us for this episode of the My Macular and Me podcast to talk about understanding a genetic diagnosis of inherited macular disease and explore the benefits of genetic testing and counselling. The Macular Society has been supporting people with macular conditions…

1
Latest research into Best disease 44:06

1y ago44:06

44:06

Send us your feedback Dr Amanda Carr, a researcher at UCL Institute of Ophthalmology, joins us for this episode of the My Macular and Me podcast. Amanda is currently working on a Macular Society funded project to switch off a faulty gene in Best disease, which causes the progression of the disease. Amanda updates on the project, which, if successfu…

1
What is myopic macular degeneration? 44:09

1+ y ago44:09

44:09

Send us your feedback What is myopic macular degeneration? And why is the number of people living with the condition increasing? Professor Pete Coffey joins us for this episode of the My Macular and Me podcast to tell us more about the condition and how in the future, it could be more common than age-related macular degeneration (AMD). The Macular …

1
What is Punctate Inner Choroidopathy (PIC)? 50:42

1+ y ago50:42

50:42

Send us your feedback In this episode of the My Macular and Me podcast we are joined by consultant ophthalmologist Alastair Denniston, along with his colleagues, to discuss Punctate Inner Choroidopathy (PIC) in more detail and hear from a patient living with PIC. The Macular Society has been supporting people with macular conditions for over 30 yea…

1
Diabetes and your eyes 43:37

1+ y ago43:37

43:37

Send us your feedback Diabetes can have a huge impact on our sight. In this episode of the My Macular and Me podcast, we are joined by consultant ophthalmologist Samantha Mann, from Guy's and St Thomas' Hospital. Samantha discusses the latest developments in treatment and research in diabetic eye disease. The Macular Society has been supporting peo…

1
Securing employment with sight loss 44:28

1+ y ago44:28

44:28

Send us your feedback In this episode of the My Macular and Me podcast we are joined by Zsuzsi Szabo of Support 4 Sight and Nick Thomas from North Wales Society for the Blind, who share their employment advice for people diagnosed with a sight condition. Finding a job can be a challenge at the best of times, but it can be so much harder to find wor…

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Charles Bonnet syndrome in children 46:32

1+ y ago46:32

46:32

Send us your feedback In this episode of the My Macular and Me podcast we are joined by Consultant Ophthalmologist and Clinician-Scientist, Professor Mariya Moosajee. She speaks to the Macular Society about her research into Charles Bonnet Syndrome, specifically in children. The Macular Society has been supporting people with macular conditions for…

1
Latest developments into Stargardt disease research 43:46

1+ y ago43:46

43:46

Send us your feedback In this episode of the My Macular and Me podcast we are joined by Professor Andrew Lotery of the University of Southampton. He speaks to the Macular Society about the latest news regarding research into Stargardt disease. The Macular Society has been supporting people with macular conditions for over 30 years. The right inform…

1
Cost of living - Support for people living with sight loss 41:29

1+ y ago41:29

41:29

Send us your feedback Our first episode welcomes our Working Age and Young People's Service Manger, Colin Daniels. The focus of this episode is benefit entitlements, cost of living contingencies and grants for equipment. The Macular Society has been supporting people with macular conditions for over 30 years. The right information and support can h…

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