When Humanitarians Kill is a podcast investigation into the Australian Red Cross Lifeblood’s criminal coverup of Australia’s deadliest medical scandal HIV & HepC contaminated blood.
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BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Ta ...
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Lan-Lan Smith, Editor-in-Chief, and Emma Cookson, Senior Editor at The Lancet Haematology, in conversation with the journal’s authors, explore their latest research and its impact on people’s health, healthcare, and health policy. A monthly audio companion to the journal, this podcast covers a broad range of topics, from racial and ethnic disparities in leukaemia survival outcomes to resuscitation with blood products compared with saline, the link between mental health and lymphoma to haemol ...
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From chronic diseases, the climate crisis, to social injustice, how are we tackling the biggest problems of the 21st century? As UCL Business (UCLB) celebrates its 30th anniversary in 2023, this new monthly podcast series will explore how we have supported UCL academics to create impact across several areas, such as: medical research, patient healthcare, the environment, and our wellbeing in a contemporary society. New episodes will be released every third Thursday of each month. Soundtrack ...
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NBDF CEO drawing inspiration from local communities
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NBDF CEO Phil Gattone traveled to regional chapters (and got infused, y’all) to meet communities on the ground, and he tells us all about it! Plus, big news for the community with a few recent therapy approvals and the latest I’m Fine segment with Michael Bishop. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes: Sub…
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The new insurance nightmare you need to know about
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Alternative Funding Programs are a nightmare new insurance tactic that has experts concerned. We’ve got Zack Duffy and Roland Lamy from the Hemophilia Alliance to break it down and tell you what to look out for. Plus, HFA’s Project ECHO and the latest Gene Therapy segment, all about Myths and Misconceptions. Presenting Sponsor: Takeda, visit bleedi…
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Lancet Haematology 10 year anniversary - meet the editors
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In a special 10 year anniversary podcast, Lan-Lan Smith, Yaiza del Pozo Martin, and Emma Cookson, the editorial team behind The Lancet Haematology, reflect on the last decade and give some insights into the editorial processes at The Lancet Group. Read our Editorial: https://www.thelancet.com/journals/lanhae/article/PIIS2352-3026(24)00289-8/fulltex…
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International Plasma Awareness Week, y’all!
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We recap NBDF’s BDC and welcome back PPTA CEO Anita Brikman to share more about International Plasma Awareness Week. Plus, the latest I’m Fine featuring guest host Michael Bishop. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show Notes: Subscribe: The BloodStream Podcast Help celebrate International Plasma Awareness Week! …
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Please support a Royal Commission of inquiry into the Australian Red Cross/CSL Infected Blood Scandal here https://www.infectedbloodaustralia.com/registration Please help Charles pay for food and medicine here https://gofund.me/76226e1e Purchase a Make Accountability Happen Again baseball cap here https://joinhighadventure.com.au/patriot-cap/…
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Live at BDC with CEO Phil Gattone!
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Coming to you LIVE from NBDF’s Bleeding Disorder conference, Patrick is with CEO Phil Gattone right after Opening Session. A walk and talk you don’t wanna miss! Also, hear how HTCs have operationally aligned to administer gene therapy with Zack Duffy and Roland Lamy from the Hemophilia Alliance on the latest Gene Therapy segment. Plus, an interview…
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Hemophilia Film: What We Wished We Could Be
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Patrick has an exclusive conversation with the filmmakers of What We Wished We Could Be, a story about a couple who must sacrifice their dreams in order to confront the consequences of the contaminated blood scandal. Patrick sits down in-studio with screenwriter, Jenna-Louise Hawkins; Director, Luke Shelley; and producer Sophie Stacy about the chal…
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Matteo Della Porta on the phase 3 COMMANDS trial examining luspatercept versus epoetin alfa in patients with lower-risk myleodysplastic syndrome
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Professor Matteo Giovanni Della Porta joins us to discuss the primary analysis of the phase 3 COMMANDS trial comparing luspatercept versus epoetin alfa in erythropoiesis-stimulating agent-naive, transfusion-dependent, lower-risk myelodysplastic syndrome patients. Continue this conversation on social! Follow us today at... https://twitter.com/thelan…
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Tax payer funded crime: the publicly funded charity that covered up the Infected Blood Scandal
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49:08
Deception from the Haemophilia Foundation Australia as they deliberately mislabel the UK Infected Blood Inquiry as a UK Hepatitis C inquiry. https://www.haemophilia.org.au/news/uk-hepatitis-c-inquiry/ Australian Red Cross letter to blood donor with HepC asking them to continue to donate their tainted blood for Haemophiliacs. https://static.wixstati…
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Gene Therapy Reimbursement? We got you covered.
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Patrick survives his first tornado warning and we’ve got Joana Baquero sharing education and advocacy updates on Factor 1 Deficiency and Tammy Black from the Immune Deficiency Foundation. Plus, a new Gene Therapy segment with Jim Kenny, an expert on pharmacy reimbursement. Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Show …
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Dr Kim Linton joins us to discuss the EPCORE NHL-1 trial testing monotherapy with the bispecific antibody epcoritamab for patients with relapsed or refractory follicular lymphoma. Read the full article: https://www.thelancet.com/journals/lanhae/article/PIIS2352-3026(24)00166-2?dgcid=buzzsprout_tlv_podcast_generic_lanhae Continue this conversation o…
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Judy Truong on ferritin reference levels and iron deficiency
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11:17
Dr Judy Truong join us to discuss ferritin reference intervals and how adoption of evidence-based ferritin clinical decision limits can help clinicians detect and treat iron deficiency, minimising propagation of related health inequity and social injustice in medicine. Read the full article: https://www.thelancet.com/journals/lanhae/article/PIIS235…
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The Dark Side of High Achievement
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37:21
Is there a darker side to the extraordinary accomplishments of people with bleeding disorders? Guest segment host, Luke Pembroke, ask just that on the latest I’m Fine, featuring blood brother and Paralympian, Jack Bridge. Also, Patrick and Amy hit up the Chief Patient Officer Summit and got insight on what true patient inclusivity is all about. Plu…
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Johannes Schetelig on remission induction versus immediate allogeneic HSCT for patients with AML
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Professor Johannes Schetelig joins us to discuss the results of the ASAP phase 3 trial comparing remission induction with immediate allogeneic haematopoietic stem cell transplantation for patients with relapsed or poor responsive acute myeloid leukaemia. Read the full article: https://www.thelancet.com/journals/lanhae/article/PIIS2352-3026(24)00065…
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Clinical Trials, Caregiving, and NEW MUSIC!?
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On this episode, Patrick James Lynch honors the late Neil Frick, Senior VP for Medical Programs at the National Bleeding Disorders Foundation, recognizing his invaluable two-decade contribution to the bleeding disorders community. We also discuss hemophilia B gene therapy with Dr. Mark Redding, focusing on unique clinical trial designs and the role…
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Australia’s health minister Mark Butler caught out using criminal deception in his response to questions about the Infected Blood Scandal from Queensland Liberal Senator Gerard Rennick.
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In this edition, Charles MacKenzie exposes direct lies from Australia’s health minister Mark Butler about the infected blood scandal and includes proof of his deception which are included in the show links. Show links Australia’s health minister Mark Butler's criminally deceptive response to questions from Liberal Queensland Senator Gerard Rennick …
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The way forward toward to justice
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Do you want Charles to keep campaigning for Infected Blood Australia? If so please donate whatever you can afford here https://gofund.me/77abc074 A timeline of Charles's activism for infected blood https://www.infectedbloodaustralia.com/cm-timelineCharles MacKenzie által
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The multi-faceted role of HTC social workers
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Patrick sits down with HTC social workers, Kathaleen Schnur and Dianne Bartlett, about the ever-evolving role of social workers in the HTC comprehensive care system. Plus, on the latest I’m Fine, Patrick answers the question, What do clotting factor levels mean to me in this new age of hemophilia treatment? Show Notes: Subscribe: The BloodStream Po…
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Life with an Invisible Disorder
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Patrick sits down with Thomas Bartlett, Myasthenia Gravis patient and advocate, about the unique struggles of living with an invisible chronic disorder. Also, we all know if you want real answers — ask a nurse. We’ve got Andrea Buxton, Nurse Practitioner at the Hemophilia Outreach Center in Green Bay, WI, with her account of the first commercial do…
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Britain’s famous tabloid the Sun reports on Aussie world darts champion and infected blood campaigner Tony David!
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DARTS STAR'S FIGHT Former darts world champion, 56, reveals doctors gave him six months to live after being injected with infected blood https://www.thesun.co.uk/sport/28206195/darts-legend-tony-david-infected-blood-scandal-deaths-door/ Was Australia’s health minister Mark Butler’s Elvis impersonation and ‘shaking of his ass’ a deliberate attempt a…
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The verdict is manslaughter and billions in compensation for victims and their affected family members.
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Australian infected blood victims call for royal commission in wake of damning UK inquiry findings https://www.9news.com.au/national/australian-infected-blood-victims-call-for-royal-commission-in-wake-of-damning-uk-inquiry-findings/450a262f-7b64-41fd-b6b2-aff1f4d96543 Aussie former darts world champion tells how infected donor blood almost killed h…
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Mild Hemophilia Matters
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Mild hemophilia truly does matter and we’re with Shellye Horowitz, formally with HFA, to hear about HFA’s Mild Matters program. Plus the final Elite Athletes segment with Paul McLaughlin and I’m Fine with Luke Pembroke. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. I’m Fine and…
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Banu Aygun on sickle cell anaemia
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Professor Banu Aygun joins us to discuss the REACH trial testing hydroxyurea dose optimisation for children with sickle cell anaemia in sub-Saharan Africa. Read the full article: https://www.thelancet.com/journals/lanhae/article/PIIS2352-3026(24)00078-4?dgcid=buzzsprout_icw_podcast_generic_lanhae Continue this conversation on social! Follow us toda…
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They turned Australia’s biggest serial killer into the face of Vegemite
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In this edition, we expose the genocide of Australian medical patients with Haemophilia and how those responsible made fortunes and were even made into the face of Australia’s favourite spread Vegemite! Show links Children used as ‘human guinea pigs’ because it was cheaper than lab chimpanzees https://metro.co.uk/2024/05/13/blood-scandal-victims-us…
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UK Blood Inquiry Clive Smith & Laurence Woollard
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Our blood brother buds, Clive Smith & Laurence Woollard join us today to share the latest from the ongoing saga of UK Blood Inquiry, plus our latest Gene Therapy segment has Mason Buxton’s story (the first hemophilia B patient to be commercially dosed with gene therapy!). Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, vi…
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Why I fought the greatest injustice in Australian medical history…
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In this edition, Charles MacKenzie speaks of the high rate of women and children infected with HIV and the deadly virus Hepatitis C from contaminated blood treatments and tainted blood transfusions. Show links 'We lived a double life to hide my little boy's HIV' https://www.bbc.com/news/articles/c0x01284v5jo Help Charles MacKenzie keep surviving an…
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Navigating the Currents: Interferons in the Treatment of Polycythemia Vera
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On this special episode of the BloodStream Podcast, we explore interferons in the treatment of polycythemia vera (or PV). This episode is brought to you by PharmaEssentia. If you’d like to learn more about polycythemia vera, check out our sister show PV Pod: Stories from the Marrow (brought to you by BloodStream Media and PharmaEssentia). Connect w…
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On the Shoulders of Giants is a hit (!) and I’m Fine is back
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Hear about the premiere of the On the Shoulders of Giants film from HFA Symposium with Patrick and Amy. Plus the I’m Fine segment is back with Luke Pembroke and Hazri Aris is featured on the latest Elite Athletes segment. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. On the Sho…
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Professor Amit Nathwani’s journey to create a one-shot cure for haemophilia A
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To mark World Haemophilia Day, we sit down with Professor Amit Nathwani of the UCL Cancer Institute to explore his journey to commercialising the groundbreaking haemophilia A treatment, Roctavian. Host Nigel Campbell is joined by Prof Nathwani and Dr. Rick Fagan, UCLB Director of Biopharm, to explore how Amit’s work looking after patients with haem…
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New NBDF CEO, Phil Gattone
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We have newly appointed NBDF CEO, Phil Gattone with us sharing his background and his vision for the organization and community. And, we have the story of the first commercially dosed patient of hemophilia B gene therapy. Hear from Jamison Buxton, the father of the patient…who also happens to be the director of the HTC. Show Notes: Subscribe: The B…
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The two imposters of the Infected Blood Scandal
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In this edition, Charles MacKenzie exposes two of the main beneficiaries of Australia’s criminal coverup of the Infected Blood Scandal. Show links Bill Bowtell biography https://publishing.monash.edu/authors/bill-bowtell/ Bill Bowtell opened the ‘gates of hell’ and helped Bill Gates corrupt Australia’s health policy… https://www.smh.com.au/national…
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Dr. Glenn Pierce on the upcoming WFH Congress + CEO of Plasma Protein Therapeutics Association, Anita Brikman
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Dr. Glenn Pierce is with us to share what to expect from the upcoming WFH Congress in Madrid, and Amy sits down with President and CCEO of the Plasma Protein Therapeutics Association (PPTA), Anita Brikman. FLOW co-host Jessica Richmond sits in for Patrick and we’ll finish up with an Elite Athletes segments will feature bleeding disorder community m…
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Ita Buttrose & the ABC Australia covered up the infected blood scandal
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In this edition, Charles MacKenzie speaks about the retirement last week of Ita Buttrose as chair of the tax payer funded Australian Broadcasting Corporation (ABC) and reveals why Australians never got to find out about their nations deadliest medical scandal HIV & HepC contaminated blood. Show links Please help Charles keep surviving and fighting …
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Highlights from ASH with Dr. Akshat Jain
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We’re back with Dr. Akshat Jain who shares highlights in bleeding disorder research from ASH 2023, plus the differences between hemophilia A vs hemophilia B gene therapies with Dr. Mark Redding. We close out with our latest Elite Athletes segments featuring bleeding disorder community legend, Perry Parker. Don’t miss it! Show Notes: Subscribe: The …
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Sabine Braat and Katherine Fielding on haemoglobin thresholds to define anaemia
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18:06
Dr Sabine Braat and Dr Katherine Fielding join us to discuss their study presenting new haemoglobin thresholds for defining anaemia. Read the full article: https://www.thelancet.com/journals/lanhae/article/PIIS2352-3026(24)00030-9/fulltext?dgcid=buzzsprout_icw_podcast_generic_lanhae Continue this conversation on social! Follow us today at... https:…
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Doctor Elisabeth Schorb joins us to discuss the MARTA phase 2 trial, treating older, fit patients with primary diffuse large B-cell CNS lymphoma with high-dose chemotherapy and autologous stem-cell transplantation. Read the full article: https://www.thelancet.com/journals/lanhae/article/PIIS2352-3026(23)00371-X/fulltext?dgcid=buzzsprout_icw_podcast…
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HFA CEO Dan Kelsey and Rare Disease Day tribute
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HFA CEO Dan Kelsey joins Patrick and Amy to respond to recent organizational changes, followed by Blood Brother, Carl Weixler, who shares a bit about HFA’s history, mission, and current state. Also, a tribute to Rare Disease Day, led by voices from BloodStream Media. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit b…
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Positive Impact: A new generation of business with society at heart
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This episode we explore Positive Impact. UCLB is helping to create a new generation of businesses from UCL academics specifically with positive societal impact at their heart. The commercialisation process can be a long road requiring financial, legal, and practical support. Nigel Campbell meets two inventors, Buffy Price Co-founder and COO of Carb…
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NBDF welcomes new CEO; HFA responds
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NBFD landed a new CEO, and HFA has responded to recent organizational changes; plus, we hear from Dr. Mark Reding and Dr. Steven Pipe about their excitement over gene therapy being added to the treatment landscape in hemophilia. We close with @theHemeNP, Maya Bloomberg talkin’ Rare Disease Day. Show Notes: Subscribe: The BloodStream Podcast Present…
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Stephan Ehl on paediatric autoimmune lymphoproliferative immunodeficiencies
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Professor Stephan Ehl joins us to discuss a prospective observational study on paediatric autoimmune lymphoproliferative immunodeficiencies. Read the full article: https://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(23)00638-1/fulltext?dgcid=buzzsprout_icw_podcast_generic_lanonc Continue this conversation on social! Follow us today at..…
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Preserving Tainted Blood History and Bath Bleeds
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49:35
We’ve got a terrific interview with Kathy MacKay and Dana Kuhn about the efforts the Committee of Ten Thousand (COTT) is taking to preserve documents from the tainted blood tragedy. And another Elite Athletes segment featuring blood brother and cyclist, Giovanny Pernudi. Oh …and Patrick had a bath bleed. Show Notes: Subscribe: The BloodStream Podca…
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Shakeup at HFA and a brand new Gene Therapy segment!
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45:27
It’s a New Year and BloodStream is back with a terrific episode. Major changes at @HFA leave Patrick wondering about the future of one of our beloved national organizations and we have folks from the FAIR initiative and CHES to share their 2024 vision for the women in bleeding disorders movement (heck yeah!). Plus, a brand new segment this year on …
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SNL screws up sickle cell.
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40:35
We’ve got SNL screwups, the mainstream acronyms continue to butcher rare blood diseases. Plus, we’ve got a new ELITE ATHLETES segment with Anthony Pezzillo (who recently became an uncle; or expanded his uncledom) and I’m Fine, this time with a focus on the caregiver experience with Jessica Bombardier. We’ll get into it all, AND MORE, on this episod…
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The Queen of the Haemophilia/Infected Blood coverup Sharon Caris retires.
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20:02
Over the last twenty two years Sharon Caris the executive director of the Haemophilia Foundation Australia (HFA) was paid millions of dollars to coverup the genocide of Australian Haemophiliacs and to make sure care was denied survivors and their loved ones. Sharon Caris announced her retirement in November, possibly timed by her and the HFA wantin…
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Dr Sarah O'Brien on the PREVAPIX-ALL trial
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Dr Sarah O'Brien joins Lan-Lan Smith to discuss results of the phase 3 PREVAPIX-ALL trial, which compares direct oral anticoagulant apixaban to low-molecular-weight-heparin for the prevention of venous thromboembolism in children with newly diagnosed acute lymphoblastic leukaemia or lymphoma. Read the full article: https://www.thelancet.com/journal…
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The World Health Organization (WHO) gets it wrong
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The World Health Organization made a decision that has heads scratching that could seriously impact hemophilia patients across the globe and a new I’m Fine segment with blood brother, Justin Levesque. Plus, Worlds AIDS Day with Maya Bloomberg and Patrick is pain-free (or close to pain-free) for the first time in a long (!!) time. Show Notes: Subscr…
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Enrico Lopriore on haemolytic disease of the fetus and newborn
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Professor Enrico Lopriore joins us to discuss a trial testing darbepoetin alfa to prevent postnatal anaemia in infants with haemolytic disease of the fetus and newborn. Read the full article: https://www.thelancet.com/journals/lanhae/article/PIIS2352-3026(23)00285-5/fulltext?dgcid=buzzsprout_icw_podcast_generic_lanhae Continue this conversation on …
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The Dark Side of Resilience + The Gratitude Game
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Hear what Patrick and Amy are grateful for as we play The Gratitude Game, because ‘tis the season, y’all! Also, A new (and fantastic!) I’m Fine segment on the dark side of resilience and Ph.D. Olav Versloot on the latest Elite Athletes segment. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdisorders.com to…
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The financial synergy between research commercialisation and the university
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27:05
In this episode, Katy Bruce, CFO of UCL Business, and Charu Gorasia, CFO of UCL, will discuss the mutually beneficial relationship between the technology transfer office, such as UCLB, and the university. They will dive into the research income financial cycle and how the commercialisation income is distributed back into the research ecosystem. Thi…
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1
Resisting Change and Holiday Dynamics
22:08
22:08
Lejátszás később
Lejátszás később
Listák
Tetszik
Kedvelt
22:08
Amy turns the table on the latest I’m Fine and puts Patrick in the hot seat as he shares how and why he resists change and the effect that has on his loved ones. Plus, Maya Bloomberg, @thehemenp, is back with a segment on family dynamics and holiday logistics with a bleeding disorder. Check it out on the latest episode of BloodStream. Show Notes: S…
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