Being a mum to a child with Prader-Willi syndrome (PWS) with Julie Foge

The Jess Ngaheu Show

In this special episode of the Jess Ngaheu Show, we're joined by Julie Foge, a devoted mother and advocate from Anchorage, Alaska. Julie shares her deeply personal journey through the unexpected challenges of the NICU and the world of special needs parenting following the diagnosis of her daughter, Eliza, with Prader-Willi syndrome (PWS) in 2016. Dive into this heartfelt conversation as Julie discusses the impact of PWS on her family, the power of advocacy, and the profound lessons of motherhood.

Guest Bio:
Julie Foge is the proud mother of three incredible daughters: Amelia, Eliza, and Caroline. Her life took a dramatic turn when Eliza was born in 2016, landing first in the NICU and subsequently entering the special needs world with a rare chromosomal condition called Prader-Willi syndrome (PWS). This pivotal moment redefined Julie's life, leading her into roles of fierce advocacy, profound connections, and a deep appreciation for the challenges and triumphs of parenting. Julie, alongside her husband Derrick, is deeply committed to raising awareness about PWS and empowering other families navigating similar paths from their home in Anchorage, Alaska.

In This Episode, You’ll Learn:

• The initial challenges and emotional turmoil of NICU stays.
• Insights into Prader-Willi syndrome and its impact on family life.
• Strategies for coping with the demands of special needs parenting.
• The importance of community and support in navigating health challenges.
• Julie’s transformation into a passionate advocate for her daughter and others with similar conditions.

Quotes from the Episode:

• "The journey through the NICU and into special needs parenting is fraught with challenges, but it is also filled with moments of profound growth and connection."
• "Advocacy isn't just about speaking up; it's about connecting hearts and fostering understanding."

Resources Mentioned:

• Prader-Willi Syndrome Association
• https://incm.org/three-ways-leaders-can-help-families-in-medical-crisis/

Connect with Julie Foge:

https://www.instagram.com/juliefoge
https://www.leaningintolove.com/
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