Rheum Champions Conversation

My Spoonie Sisters

Curious about how to navigate life with rheumatoid arthritis while maintaining a positive outlook? Join us as we reconnect with Cheryl Crow with Jen Weaver, spirited advocates and fellow Spoonies, who share her heartfelt journies. Jen opens up about the severe allergic reactions she's faced with TNF inhibitors leading to pustular psoriasis, offering a candid look at her daily routines and the importance of personalized treatment plans. Her story is one of resilience, community, and finding unexpected blessings amid the challenges of chronic illness.
Ever wondered how social media can lead to life-changing opportunities? Discover how our online connections brought us to the Rheumatology Research Foundation, where we took on the pivotal roles of Rheum Champions at the Rheumatology Investigators Meeting in Denver. Learn about the Foundation’s mission to address workforce shortages and the critical role of patient and caregiver voices in shaping the future of rheumatology research. From grant updates to the purpose of the investigators' meeting, we provide an insider’s look at the exciting advancements in the field.
Finally, gain valuable insights and practical tips for living with arthritis, whether you’re newly diagnosed or a long-time warrior. From highlighting favorite arthritis gadgets like the Kitchen Mama can opener and Grace and Abel compression gloves, to sharing personal entertainment picks and exploring support groups, we cover it all. Plus, hear about our new roles as moderators on the Cabana app and the importance of community support. Tune in for an episode filled with heartfelt stories, expert advice, and a touch of inspiration to help you navigate your journey with arthritis.
https://rrf.beta-markstein.co/rheum-champion/
https://podcasts.apple.com/us/podcast/arthritis-life/id1519637317?i=1000662917607
Send us a text

Hi, Jen here! We are so glad to have you back. I want to personally thank those that have signed up with Rare Patient Voice recently. We love your support of the podcast, and this is another way that you can by signing up with Rare Patient Voice through our referral link. Remember, we're here to support you every step of the way.

Support the show

Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSisters
https://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/

Fejezetek

1. Living With Rheumatoid Arthritis (00:00:00)

2. Becoming Involved in Rheumatology Research (00:10:56)

3. Advancements in Rheumatology Research (00:15:35)

4. Patient Feedback on Rheumatology Research (00:22:15)

5. Personal Insights and Recommendations (00:35:48)

6. Exploring Support Groups for RA (00:39:49)