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A tartalmat a Nele von Horsten (née Handwerker) and Nele von Horsten biztosítja. Az összes podcast-tartalmat, beleértve az epizódokat, grafikákat és podcast-leírásokat, közvetlenül a Nele von Horsten (née Handwerker) and Nele von Horsten vagy a podcast platform partnere tölti fel és biztosítja. Ha úgy gondolja, hogy valaki az Ön engedélye nélkül használja fel a szerzői joggal védett művét, kövesse az itt leírt folyamatot https://hu.player.fm/legal.
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#138: Symptoms and Symptom Management – What New Research Means for People with MS. An ECTRIMS 2025 Special

16:26
 
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Manage episode 516330867 series 3562061
A tartalmat a Nele von Horsten (née Handwerker) and Nele von Horsten biztosítja. Az összes podcast-tartalmat, beleértve az epizódokat, grafikákat és podcast-leírásokat, közvetlenül a Nele von Horsten (née Handwerker) and Nele von Horsten vagy a podcast platform partnere tölti fel és biztosítja. Ha úgy gondolja, hogy valaki az Ön engedélye nélkül használja fel a szerzői joggal védett művét, kövesse az itt leírt folyamatot https://hu.player.fm/legal.

In this episode, we explore key insights from the ECTRIMS 2025 session "Symptoms and Symptom Management". Four young researchers share findings that go beyond MRI scans and lab data — focusing on what truly matters in daily life with MS.

🧠 Andreas Kirknæs Færk examined how symptoms cluster and evolve over time. 📊 Sean Apap Mangion showed how patient-reported outcomes can predict disease progression. 💼 Mathia Kirstein explored symptom-related risk factors for early retirement. 💊 Marie Mainguy highlighted inequalities in access to symptomatic treatments across France.

Together, their work reminds us that MS care must be holistic — addressing physical, cognitive, and emotional health, as well as fair access to therapy.

Listen in to learn:

  • Which symptoms tend to occur together and why that matters

  • How self-reported data can signal early changes in MS

  • What factors lead to early retirement in people with MS

  • Why access to treatment for spasticity and walking impairment remains uneven

  • How young scientists are shaping the future of MS research

For more details and resources, visit 👉 https://ms-perspektive.com/138-symptom-management

✨ Closing Thoughts

These studies not only advance scientific understanding — they also reflect the dedication and creativity of a new generation of researchers who are deeply attuned to the real-world challenges faced by people with MS.

Their work reminds us that progress in MS care depends as much on empathy and collaboration as it does on data and technology.

---

See you soon and try to make the best out of your life, Nele

For more information and positive thoughts, subscribe to my newsletter for free.

Click here for an overview of all podcast episodes published so far.

  continue reading

132 epizódok

Artwork
iconMegosztás
 
Manage episode 516330867 series 3562061
A tartalmat a Nele von Horsten (née Handwerker) and Nele von Horsten biztosítja. Az összes podcast-tartalmat, beleértve az epizódokat, grafikákat és podcast-leírásokat, közvetlenül a Nele von Horsten (née Handwerker) and Nele von Horsten vagy a podcast platform partnere tölti fel és biztosítja. Ha úgy gondolja, hogy valaki az Ön engedélye nélkül használja fel a szerzői joggal védett művét, kövesse az itt leírt folyamatot https://hu.player.fm/legal.

In this episode, we explore key insights from the ECTRIMS 2025 session "Symptoms and Symptom Management". Four young researchers share findings that go beyond MRI scans and lab data — focusing on what truly matters in daily life with MS.

🧠 Andreas Kirknæs Færk examined how symptoms cluster and evolve over time. 📊 Sean Apap Mangion showed how patient-reported outcomes can predict disease progression. 💼 Mathia Kirstein explored symptom-related risk factors for early retirement. 💊 Marie Mainguy highlighted inequalities in access to symptomatic treatments across France.

Together, their work reminds us that MS care must be holistic — addressing physical, cognitive, and emotional health, as well as fair access to therapy.

Listen in to learn:

  • Which symptoms tend to occur together and why that matters

  • How self-reported data can signal early changes in MS

  • What factors lead to early retirement in people with MS

  • Why access to treatment for spasticity and walking impairment remains uneven

  • How young scientists are shaping the future of MS research

For more details and resources, visit 👉 https://ms-perspektive.com/138-symptom-management

✨ Closing Thoughts

These studies not only advance scientific understanding — they also reflect the dedication and creativity of a new generation of researchers who are deeply attuned to the real-world challenges faced by people with MS.

Their work reminds us that progress in MS care depends as much on empathy and collaboration as it does on data and technology.

---

See you soon and try to make the best out of your life, Nele

For more information and positive thoughts, subscribe to my newsletter for free.

Click here for an overview of all podcast episodes published so far.

  continue reading

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