))
National Organization for Rare Disorders
Manage episode 371308401 series 3493674
A tartalmat a Charity Talks biztosítja. Az összes podcast-tartalmat, beleértve az epizódokat, grafikákat és podcast-leírásokat, közvetlenül a Charity Talks vagy a podcast platform partnere tölti fel és biztosítja. Ha úgy gondolja, hogy valaki az Ön engedélye nélkül használja fel a szerzői joggal védett művét, kövesse az itt leírt folyamatot https://hu.player.fm/legal.
Debbie Drell, the Director of Membership for the National Organization for Rare Disorders, is this episode’s guest. NORD is the leading advocacy organization representing patients and families affected by rare diseases, and is committed to the identification, treatment and cure of 7,000 rare diseases. For almost 40 years, NORD has led the way in voicing the needs of the rare disease community, driving supportive policies and education, advancing medical research, and providing patient and family services for those who need them the most. Tens of millions of people are impacted by rare disorders, and NORD's goal is to improve the lives of every member of the rare disease community. (0:24). Website: rarediseases.org
…
continue reading
63 epizódok
Megosztás
