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A Glanzmann's Thrombasthenia Patient's Advocacy Journey
Manage episode 357072815 series 3422808
A tartalmat a Glanzmann's Research Foundation biztosítja. Az összes podcast-tartalmat, beleértve az epizódokat, grafikákat és podcast-leírásokat, közvetlenül a Glanzmann's Research Foundation vagy a podcast platform partnere tölti fel és biztosítja. Ha úgy gondolja, hogy valaki az Ön engedélye nélkül használja fel a szerzői joggal védett művét, kövesse az itt leírt folyamatot https://hu.player.fm/legal.
Esme Vazquez found her calling in life through her work in occupational therapy. She believes having Glanzmann's Thrombasthenia helps her empathize and better care for the children she works with. Advocating for her patients became a passion that spilled over into her personal life and fueled her drive to advocate for the voiceless in her world of ultra-rare bleeding disorders.
In a short time, she has become a champion for those underserved and is making waves in the national bleeding disorder community. She now works with the National Hemophilia Foundation on the National Research Blueprint to correct those gaps in patient care.
Community Voices in Research
9 epizódok
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