A(z) Cystic Fibrosis Foundation csatorna legjobb podcastjai (2024)

1
Private Patient Advocate offers you help 31:46

2d ago31:46

31:46

What is a Private Patient Advocate? Do you need one? Laura talks to Dr. Elena Borrelli who is a Doctor of Medical Science and a Board-Certified Patient Advocate who helps people and families with their health care journey. She practices in Shelby Township, Michigan. Dr. Borelli manages their healthcare as she tries to help them live their healthies…

1
Running a marathon with CF: Dylan Mortimer 35:10

9d ago35:10

35:10

Dylan Mortimer did the NYC Marathon. If you know him, you know that he had two double lung transplants. One in 2017 and one two years later in 2019. His second transplant was in NYC and Dylan talks about what it was like to go back to the streets he could barely walk, pre-transplant. It so touching as Dylan chairs his story with us. I appreciate al…

1
Muscle-Invasive Bladder Cancer Basics with Dr. Trushar Patel 5:40

13d ago5:40

5:40

Our guest is Dr. Trushar Patel, a urologic oncologist and Residency Program Director at the University of South Florida. He talks with us about the basics around muscle-invasive bladder cancer. Learn about common symptoms, diagnosis and treatment options to start talking with your health care team.For more information, please visit www.UrologyHealt…

1
Getting the Chat Out About Men's Health with Prostate Cancer Survivor, Henry Butler 37:45

20d ago37:45

37:45

Our guest is Henry Butler, a prostate cancer survivor from the United Kingdom and owner of The Butlers Wine Cellar. He talks with us about his prostate cancer journey and shares details about men's health so other patients can feel comfortable chatting about it in their own lives.For more information, please visit www.UrologyHealth.org and don’t fo…

1
Partnership to Improve Patient Care: legislation explained! 43:51

23d ago43:51

43:51

Patient rights: do you know about the rights you have in regard to healthcare? There is a lot of information for you that Sara and Thayer serve to you here, in terms you can understand. They both work for the Partnership to Improve Patient Care, or PIPC (a coalition). Sara Traigle van Geertruyden is the Executive Director at PIPC. Thayer Roberts is…

1
AI, Cybersecurity, and IT Innovation with Open Tier Systems 30:53

29d ago30:53

30:53

Are you looking to optimize your business IT and cybersecurity strategy? In this episode, we sit down with Rick Carpenter and Brian McCarthy of OpenTier Systems, an IT managed service provider that's been transforming businesses since 2006. We discuss their partnership, the unique IT solutions they provide, and how they help small businesses scale …

1
Heather Trammell: CF and finding your voice 37:53

30d ago37:53

37:53

Life with CF is different for everyone. We have a lot of the same challenges, but we do grow with the disease differently. Heather Trammell, CF Mom to 7 year old Charlie is married to Christopher, (for 13 years now). Heather is a legal assistant in the compliance department at Credit Acceptance. Heather has so much CF Mom wisdom. I am glad to call …

1
Inside Uplink Studios: Esports, STEM, and Giving Back with Derek Rodner 39:35

1M ago39:35

39:35

How can esports build better gamers and better humans? In this episode, we sit down with Derek Rodner, Chief Gaming Officer of Uplink Studios, a youth-focused esports training and family entertainment center. Derek shares Uplink’s mission to combine gaming, STEM education, and philanthropy to create a positive impact on the community. From esports …

1
Touraj Manshadi falling through the gaps in health policy 36:41

1M ago36:41

36:41

We’re in Canada for this podcast. Canadian Advocate Beth Vanstone has two daughters, one with CF and she’s hosting this podcast with Laura Bonnell. Beth is introducing us to 32-year-old To Touraj Dehghan Manshadi who has a CF mutation that is common to Iran, but rare in Canada where he lives. You may be surprised to learn Canada does not have a rar…

1
Dr. David Weiman on Entrepreneurship and Leadership at Weiman Consulting 39:30

1M ago39:30

39:30

What does it take to build a successful consulting firm? In this episode, we sit down with Dr. David Weiman, an executive coach and founder of Weiman Consulting. Dr. David discusses the core services of Weiman Consulting, including talent assessment, executive coaching, and leadership development. He shares his unique journey from a background in r…

1
CURE FOUND MSU EXPANDS TO UM 39:10

1M ago39:10

39:10

I always tell this group of undergrad students that they are our future, and that makes the future look bright. Atef Choudhury and Naim Mashni are incredible people and students. They're both Seniors at Lyman Briggs College -- majoring in Human Biology. They're minor is in business and they're on the pre- med track. Atef and Naim are the co-founder…

1
Inside Cystic Fibrosis: A Conversation with Kate Hylan of the Cystic Fibrosis Foundation 23:53

2M ago23:53

23:53

What does it take to find a cure for a rare disease like Cystic Fibrosis? In this episode, we sit down with Kate Hylan, Director of Development for the Cystic Fibrosis Foundation, to discuss the foundation's mission and the challenges of raising awareness for this orphan disease. We dive into the genetic nature of CF, its impact on patients, and th…

1
Laura Bonnell - From news reporting, to CF and beyond. 31:04

2M ago31:04

31:04

From news reporting, to CF and beyond. Laura talks about her journey. The Bonnell Foundation: Living with cystic fibrosis is 14 years old. "I was so hopeful all those years ago, that my Foundation would take off, and now look at it! We have helped CF families from Michigan to California with financial assistance, lung transplant grants and Educatio…

1
Living with a Urologic Cancer with Dr. Kristen Scarpato and Heather Honoré Goltz, PhD 37:13

2M ago37:13

37:13

Our guests are Dr. Kristen Scarpato, a urologic oncologist at Vanderbilt University Medical Center, and Dr. Heather Honoré Goltz, a professor of social work at the University of Houston Downtown and a bladder cancer caregiver. The goal of this podcast is to give support and guidance to urologic cancer patients, their loved ones and their friends. D…

1
Meet the Moms Behind Lessen the Loads: Revolutionizing Laundry & Organization 39:58

2M ago39:58

39:58

Feeling overwhelmed with laundry and household chaos? In this episode, we sit down with Ally and Mary Catherine, founders of Lessen the Loads, a women-owned laundry and organizational service helping busy moms reclaim their time. They share their journey from friends to business partners, their unique approach to laundry pickup services, and the ad…

1
Sorcha's CF journey: from diagnosis to addiction and discovery 44:28

2M ago44:28

44:28

We discuss suicide in this podcast. This could be a trigger for some for you. Please remember the National Suicide Hotline can be reached via text or by calling 988. Sorcha Slyvester-Martin from diagnosis to drugs and discovery. When she was three days old, she was diagnosed with Cystic Fibrosis. She says she had several near-death experiences. Her…

1
Prostate Cancer Image Testing with Dr. Daniel Lin 12:52

2M ago12:52

12:52

Our guest is Dr. Daniel Lin, a urologist, professor and Chief of Urologic Oncology at the University of Washington and professor of the Division of Public Health Sciences at the Fred Hutchinson Cancer Center. The goal of this podcast is to help patients and caregivers learn how prostate imaging is used to detect prostate cancer. Dr. Lin talks about…

1
The 80/20 Rule in Content Marketing (Inspired by the Trump/Harris Debate) 6:39

2M ago6:39

6:39

In this episode, Dane shares some quick thoughts on how one small piece of content can be proliferated (for better or for worse) across media platforms, and how that can impact your brand.Shoemaker Films, LLC által

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My brother and me! Rare, a bit of CF & COTA! 41:11

2M ago41:11

41:11

In this podcast you'll meet my brother Noah Teicher, and my nephew Colton Teicher. I have two younger brothers, but my brother Noah (the middle child) has two boys who had a rare disease. And we talk about their journey from having a rare disease to being cured. Noah and Colton talk about their journey with the Children’s Organ Transplant Associati…

1
Glenn Ammarell of Yurconic Agency on Insurance Challenges and Opportunities 30:59

3M ago30:59

30:59

Are you choosing the right broker for your business? In this episode, we sit down with Glenn Ammarell of Yurconic Agency, who has been in the industry for over ten years. Glenn talks about the hard vs. soft market conditions, the role of AI in insurance, and why building strong business connections is so important. Tune in to learn how these factor…

1
The Evolution of Digital Marketing and Podcasting with Vince Quinn 1:00:27

3M ago1:00:27

1:00:27

Why do nearly half of all podcasts don't make it past the third episode? In this episode, we sit down with Vince Quinn, Co-founder of SBX Productions, to uncover the hard truths behind podcast production. Vince shares the challenges of podcasting, the importance of marketing, and how to turn a podcast into a powerful business tool. We also dive int…

1
How We Execute Your Content Strategy 10:00

3M ago10:00

10:00

How can 6 hours of filming turn into 80 pieces of content? In this episode, I share exclusive insights into our execution phase of our content strategy. I walk through our streamlined process of transforming your strategy into high-impact content. I discuss everything from producing multiple short-form videos to crafting engaging blog posts and mor…

1
The Ultimate Guide to Interviewing 12:56

3M ago12:56

12:56

Here’s how you can take your interview skills to the next level! In this episode, I share valuable tips and insights for interviewers looking to improve their skills. After conducting hundreds of interviews with clients and guests on our podcast, I developed a core set of best practices easy enough for anyone planning to conduct an interview can fo…

1
Essential Tips for Interviewees 15:07

4M ago15:07

15:07

Want to nail your next interview? In this episode, we share essential tips for interviewees. I discuss how to get ready, what to do on the day, and what video producers like us look for. I break down the basics like getting a good night's sleep and staying hydrated, to pro tips like preparing without sounding rehearsed and choosing the right locati…

1
How to Build a Content Strategy That Works 21:24

4M ago21:24

21:24

Are you struggling to create a content strategy that delivers results? In this episode, I share the elements of building a successful content strategy at Shoemaker Films. I discuss what goes into a content strategy, from setting goals and identifying target audiences to creating content pillars and engagement plans. I talk about how a well-crafted …

1
The Grateful Game with Bladder Cancer Survivor, Margo 36:19

4M ago36:19

36:19

Our guest is an incredible woman and bladder cancer survivor, Margo. In this episode, Margo details her battle with cancer, the loneliness she felt during treatment and how gratitude pulled her out of the dark. Keep listening to hear Margo share her inspiring story.For more information, please visit www.UrologyHealth.org and don’t forget to subscri…

1
How to Inject Video into Your Marketing & Sales Funnel 43:00

4M ago43:00

43:00

No matter what you're selling, everyone goes down this funnel. In this episode, we discuss how incorporating video into each stage of your marketing and sales funnel can transform your business. I define what a funnel is and break down the traditional marketing and sales funnel into four key stages: Attention, Interest, Desire, and Action. Then, I …

1
Diary of a Dying Girl, Diane (Mallory) Shader Smith 27:26

4M ago27:26

27:26

Diane Shader Smith’s daughter Mallory died from complications of cystic fibrosis 6 years ago. She was 25 years old. Diane initially published her daughter’s diary, "Salt in My Soul". This book gave insight into how Mallory was feeling during her CF fight. Her deepest thoughts, and life lessons. Diane Shader Smith is now releasing a second book on b…

1
Sam Sinns: The Man Behind a Disney inspired Dance Studio 25:32

4M ago25:32

25:32

What does it take to go from zero dance experience to owning the happiest dance studio on earth? In this episode, I sit down with Sam Sinns, a former Disney dancer and the owner of Twirl dance studio in Newtown Square, PA. Sam shares his incredible journey from starting as a Disney dancer with zero dance experience to opening his own dance studio: …

1
Special Insurance for CF families (and others) in MI 33:29

4M ago33:29

33:29

Children’s Special Health Care Services (CSHCS): Have you heard of it? In the simplest terms, it is defined by the need for specialty care required for your child. It’s not a Medicaid program. Access to the program has nothing to do with your household income. The program has a lot of benefits. CSHCS covers transportation that can include airfare a…

1
The Sweet Success of TAFF Treats with Chris and Katie 27:04

4M ago27:04

27:04

In this episode, we are joined by Katy and Chris, life partners and owners of TAFF Treats, a freeze-dried candy business based in Brookhaven, PA. Chris and Katy discuss how their business started, the choices they made as entrepreneurs, and the obstacles they've encountered. TAFF Treats offers a unique selection of 25 different freeze-dried candies…

1
Forti Homes: Insights into Today's Real Estate Market 1:07:00

5M ago1:07:00

1:07:00

In this episode, we sit down with Sarah Forti, Realtor and Team Owner of Forti Homes, and Jackie McCormick, a dedicated real estate professional committed to helping individuals find their perfect home. Sarah and Jackie talk about their journey from working as individual agents to forming a highly successful real estate team, sharing the challenges…

1
Fighting for Men's Health with Cystic Fibrosis Survivor, Reuben Samuels 37:24

5M ago37:24

37:24

Our guest is Reuben Samuels, the President of Breathe Easy International and a cystic fibrosis survivor. He talks about living with cystic fibrosis and his journey fighting for his own health along the way. Reuben shares some great insight into men's health and advocates for men getting the help they need to stay healthy.For more information, pleas…

1
Snapology: Education made fun with LEGO® Bricks, K'Nex, and Technology 29:13

5M ago29:13

29:13

In this episode, we are joined by Matt Ralph, franchise owner of Snapology and member of the Newtown Square Business Association. Matt talks about his journey of discovering Snapology and its innovative approach. Snapology uses hands-on activities to educate children in science, technology, engineering, art, math, and literacy, all while building s…

1
Remembering Matt McCloskey of Take a Breather 37:29

5M ago37:29

37:29

Shortly after we did this podcast Matt died from complications of cystic fibrosis. With permission from his sisters, and dear friend Jennifer Bleecher (featured in this podcast) we are now airing this podcast to shine a light about what a great man Matt was. He speaks in this podcast about concern for his health. Thanks to Jenn, his family and to M…

1
How Garrett Williamson is Changing Lives in Their Community 27:14

5M ago27:14

27:14

In this episode, we sit down with Carol Kaplan Ruark, the Executive Director of Garrett Williamson, to explore the incredible work this non-profit organization does in connecting people with nature and supporting under-resourced families. From agriculture education and childcare to summer camps, Garrett Williamson offers a unique environment for ch…

1
The Fearless Vagina: Ellen Dolgen 1:00:06

5M ago1:00:06

1:00:06

As people with cystic fibrosis live longer, with a life expectancy currently at about 56 years old, many women with CF will be going through menopause. I recently spoke to doctors at a hospital gathering, and recommended they speak to women with CF about menopause. They agreed. It's time. There is so little discussion and education about women and …

1
How Shoemaker Films Turns Your Concept Into Engaging Media 16:52

5M ago16:52

16:52

We've gotten a few questions recently about how we work with clients - and we break it down in the latest episode of the SHOEMAKER LAB. Mainly, we have two ways we go to market - single project videos and a monthly retainer. It all depends on the goals of each unique client and the deliverables we are producing for our clients. Whether it's a singl…

1
Dr. Caleb Bupp, Rare Genius (in our opinion) 43:39

5M ago43:39

43:39

Dr. Caleb Bupp. In my opinion. A scientific star. He is a most humble human, but has every right to brag, but he never would. I do believe he's a genius. You will love this podcast. We talk about rare disease, his family and how he discovered and helped families who had no rare disease answers, until they met him! An absolute scientific rock star. …

1
Generations of Local Excellence: Inside D&K Appliances with Karen, Dan, and Mike 27:30

6M ago27:30

27:30

In this episode, we sit down with Karen, Dan, and Mike, the passionate owners of D&K Appliances. They share their amazing journey from a small garage-based service in Springfield to a flourishing enterprise with over 40 employees and 2 locations in PA. We learn about the unique aspects that go into the growth of D&K Appliances, including their exce…

1
Cambrey Vasconez White - rare mutations 38:33

6M ago38:33

38:33

Cambrey Vasconez White is the mother of toddler Rowland, who has Cystic Fibrosis. If you listened to our podcast with Vicky Maldonado, they have similar struggles. Cambrey is also working to find an equitable approach to rare mutations in the U.S. and Canada. These two women connected, as you’ll hear, because their sons share the same mutation. Row…

1
Crafting Success: Meet the Young Franchise Owner of Board & Brush, Newtown Square 21:15

6M ago21:15

21:15

How does a part-time job in high school lead to owning a business? In this episode, we sit down with Sami Rineer, the owner of Board and Brush Newtown Square, PA, to talk about her journey of being an assistant to becoming a successful business owner. Sami discusses the realities of running a business, sharing the joys and challenges of being a you…

1
Brandi Berry, Chidlren's Special Health Care Services Prgrm 39:34

6M ago39:34

39:34

Did you know most states have programs for CF families, and they don’t have to do with your income? Michigan has one of the best programs in the Country. It’s called Children’s Special Healthcare and acts as a secondary insurance to pediatric and adult patients. Brandi Berry tells us all about it. Brandi Berry, LLMSW is the Program Coordinator of t…

1
Energy Healing With Katie: Reiki and Spiritual Life Coaching 21:17

6M ago21:17

21:17

Everything surrounding us is made of energy including our thoughts and emotions. Starting at a young age, we experience life events, traumas and situations/people that cause us stress. This leads us to feel heavy, low vibrational emotions such as anger, guilt, shame, jealousy, etc. Overtime, they become stuck in our body and may eventually manifest…

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