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Rare with Flair

Casey Greer and Cassandra Mendez

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Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and everything in between as they live their best, rare, lives! For show notes, go to rarewithflair.com
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hi hello hey for over the 100th time!!! When we set out to create this show back in 2020, we had no idea of making it to 100 episodes. Even fewer sounded like a lofty and unreachable goal, and yet, here we are! We are so proud and honored by everyone who’s listened, whether just recently or from the beginning; whether sporadically or loyally, you a…
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hi hello hey, we’ve got a spicy story to share! After our week enjoying the NOAH conference (that we shared in our last episode), a group of us decided to spend a day in Disneyland. Unfortunately, our magical day immediately turned sour as changes in Disney’s Disability Access Services (DAS) Pass made it almost impossible for us to get accommodatio…
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hi hello hey, it feels so good to have reunited again this year! If you’ve followed us for some time, you’ll know we’re both pretty involved with a couple nonprofits. We’ve talked at length about the Hermansky-Pudlak Syndrome Network and their annual conferences (listen to episodes from 2021, 2023, and 2024). We also love working with (and in Case’…
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hi hello hey, get ready for some word vomit about oversharing! Loyal listeners may find this premise familiar since we did an episode about oversharing on social media just last year. Funnily enough though, oversharing isn’t limited to online experiences. Like many of our topics, this came up as part of living our daily lives and reflecting on the …
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hi hello hey, we need to talk about blood. Fear not, squeamish folks: this won’t get too graphic. As you may know if you’ve heard our tagline, we have the same rare disease, Hermansky-Pudlak Syndrome! We’ve talked about HPS in may forms: conferences in 2021, 2023, and 2024, chronic illness, and many other episodes on our vision. Unbelievably, we’ve…
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hi hello hey, we’re back to bring the “flair” by combining personal style and personalities! Whether you love fashion like us or despise shopping, it’s important to understand your style. Not only does it make your closet more cohesive, but it can also help you know what kind of pieces to buy that you’ll actually wear! Case learned about the 8 styl…
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hi hello hey, the title says it all: Cassandra’s guide dog, Romana, is retiring Like humans, guide dogs also get to retire from their years of hard work! Romana has worked for nearly 8 wonderful years and has earned a well deserved rest. In this episode, Cass explains what the retirement process entails. She and Case share memories and laughs from …
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hi hello hey, it’s springtime, which also means we get to recap one of our favorite things: the annual Hermansky-Pudlak Syndrome family conference! Back in 2021, we explained this very unique conference before back in episode 16 (!), so we recommend giving it a listen if you haven’t already. We love to recap these special times together like we did…
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