I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
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The RadioGraphics Podcast Team discusses recently published articles. Subscribe today on Apple Podcasts, Google Play, and Spotify.
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Podcast by European Respiratory Society
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In this episode, Dr. Robert Frantz, a cardiologist at the Mayo Clinic, discusses current and upcoming clinical research in pulmonary arterial hypertension (PAH). He emphasizes the low participation rate of PAH patients in clinical trials and encourages patients to consider participating, as it not only benefits themselves but also helps advance med…
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Episode 474 - Amy Gietzen
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Amy Gietzen, a patient diagnosed with systemic scleroderma, shares her journey and experiences living with the disease. She discusses her initial symptoms, the shock of the diagnosis, and the lack of information and resources available at the time. Despite facing numerous challenges, including pulmonary fibrosis and pulmonary arterial hypertension,…
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Practical Guide to VI-RADS
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Dr. Refky Nicola speaks with Drs. Jônatas Fávero Prietto dos Santos, Alice Schuch, Maurício Zapparoli, and Valdair Francisco Muglia about their article on Practical Guide to VI-RADS. Practical Guide to VI-RADS: MRI Protocols,Lesion Characterization, and Pitfalls. Fávero Prietto dos Santos et al. RadioGraphics 2024; 44(3):e230149.…
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Episode 473 - Alvin Rocha MSN RN CPN PHN
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Alvin Rocha is a nurse care manager and pulmonary hypertension coordinator at Children's Hospital Los Angeles. He manages PH patients from birth to early adulthood. His main goal is to prepare these patients for the transition into the adult world. He is excited about the advancements in therapies and clinical trials and looks forward to attending …
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In this episode, Dr. Dunbar Ivy, a pediatric cardiologist at the University of Colorado, discusses the upcoming World Symposium on Pulmonary Hypertension, where experts from around the world will gather to discuss the progress made and future directions. Dr. Ivy highlights the work of the pediatric pulmonary hypertension task force, which aims to d…
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Abnormalities with Anti–Amyloid-β Therapy
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Dr. Pavan Brahmbhatt summarizes an article in RadioGraphics titled Amyloid-related Imaging Abnormalities in Alzheimer Disease Treated with Anti–Amyloid-β Therapy Amyloid-related Imaging Abnormalities in Alzheimer Disease Treated with Anti–Amyloid-β Therapy. Agarwal et al. RadioGraphics 2023; 43(9):e230009.…
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Episode 471 - Nola Martin
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Nola Martin shares her experience with pulmonary arterial hypertension (PAH). Nola describes the physical and mental challenges she faced, including fatigue, weight gain, and the need to ask for help. Nola emphasizes the importance of self-advocacy and fighting for one's own health. She recounts a situation where she had to push her doctor to liste…
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Episode 470 - Eric Austin, MD
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In this episode, Dr. Eric Austin, a pediatric pulmonologist and pulmonary hypertension doctor, discusses the upcoming World Symposium on Pulmonary Hypertension, which will focus on various aspects of pulmonary hypertension research and clinical care. Dr. Austin is part of the task force on genetics and genomics, which aims to explore the genetic la…
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Host Dr. Jonathan Revels summarizes the RadioGraphics article titled “Epicardial Space: Comprehensive Anatomy and Spectrum of Disease”. Epicardial Space: Comprehensive Anatomy and Spectrum of Disease. Roset-Altadill et al. RadioGraphics 2024; 44(4):e230160.
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Episode 469 - Victoria McKinnon
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Victoria McKinnon shares her personal experience with pulmonary hypertension, specifically her son Owen’s eight week battle with the condition. Owen was diagnosed with alveolar capillary dysplasia (ACD), a genetic disease that causes pulmonary hypertension. Despite initial improvements, they ran out of treatment options and ultimately had to make t…
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Episode 468 - Wolf Haley
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11:57
Haley (aka @Wolf Haley), who was diagnosed with pulmonary hypertension (PH) at 18 years old, shares her journey with the disease and how she has found healing and purpose through art and advocacy. Haley discovered her passion for art as a form of therapy, using watercolor to express her thoughts and emotions about living with PH. Haley also works a…
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BPA in the Management of CTEPH
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Guest host Dr. Andrew Chesley summarizes a RadioGraphics article about the alternative therapeutic option of Balloon pulmonary angioplasty for patients with chronic thromboembolic pulmonary hypertension. Balloon Pulmonary Angioplasty in the Management of Chronic Thromboembolic Pulmonary Hypertension. Higuchi et al. RadioGraphics 2022; 42:1881–1896.…
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Dr. Jason Weatherald, a pulmonologist at the University of Alberta, discusses a study on the socioeconomic burden of pulmonary arterial hypertension (PAH) in Canada. The study, conducted through PHA Canada, surveyed PAH patients and their caregivers to understand how the disease affects their ability to work and perform daily activities. The result…
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Karen Martinez, a mother from Eastvale, California, shares her experience with Camp del Corazon, a camp for children with congenital heart defects and lung disease. Her daughter attended camp for the first time at the age of seven and has been going every summer since. The camp offers events throughout the year and fosters lifelong connections amon…
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Shoulder and Elbow Injuries in Adult Overhead Throwers
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Host Dr. Jennifer Weaver discusses how overhead throwing, particularly in baseball, subjects the shoulder and elbow to various unique injuries. Shoulder and Elbow Injuries in Adult Overhead Throwers: Imaging Review. Goes et al. RadioGraphics 2023; 43(12):e230094.
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In this episode, Joellen Brown shares her experience with pulmonary hypertension (PH) on the 15th anniversary of her diagnosis. Joellen was born with a hole in her heart and had her first open heart surgery at the age of two and a half. She believes she may have had PH since birth, but was not aware of it due to limited research in the 1950s. Joell…
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Episode 464 - Chelsea Price
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In this episode, Chelsea Price shares her experience living with pulmonary arterial hypertension (PAH). She emphasizes the importance of having a good support system, including her church community and connecting with other friends with PAH. Chelsea is grateful for the good days she has and strives to be an active mom for her children. Discover eve…
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Neonatal Stroke: Venous Focus
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Host Dr. Lily Wang and guest Dr. Alisa Kanfi discuss an article about Neuroimaging of Neonatal Stroke focusing on venous strokes. Neuroimaging of Neonatal Stroke: Venous Focus. Lai et al. RadioGraphics 2024; 44(2):e230117.
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Episode 463 - Rajan Saggar, MD
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In this episode, Dr. Rajan Saggar, a pulmonologist at the University of California in Los Angeles, discusses the complications of pulmonary hypertension in various lung diseases. He explains that pulmonary hypertension can either be its own disease or can complicate other conditions such as heart disease or lung tissue diseases like emphysema or fi…
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In this episode, Dr. Sandeep Sahay, a pulmonologist at Houston Methodist Hospital, discusses the concept of disease modification in the treatment of pulmonary hypertension (PH). He explains how traditional PH therapies focus on vasodilation, reducing pressure in the pulmonary artery by dilating blood vessels. However, newer therapies, such as sotat…
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Multimodality Imaging in Metabolic Syndrome
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Guest host Dr. Sarah Bastawrous summarizes the article titled “Multimodality Imaging in Metabolic Syndrome: State-of-the-art Review” from the March 2024 RadioGraphics issue. Multimodality Imaging in Metabolic Syndrome:State-of-the-Art Review. Kalisz et al. RadioGraphics 2024; 44(3):e230083.
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Episode 460 - Lewis Romer, MD
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Dr. Lewis Romer discusses his work on the PPHNet's Kids MoD PAH Trial: Mono- vs. Duo-Therapy for Pediatric PAH patients. The Kids Mod PAH study is a research project funded by the NIH that aims to determine the best initial therapy for children with newly diagnosed pulmonary hypertension. The study compares the effectiveness of one medication (sild…
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Preventing and Mitigating Radiology System Failure
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Guest host Dr. Robert Morris summarizes the article “Preventing and Mitigating Radiology System Failures: A Guide to Disaster Planning” from the November-December 2021 issue of RadioGraphics. Preventing and Mitigating Radiology System Failures: A Guide to Disaster Planning. Gibney et al. RadioGraphics 2021; 41:2111–2126.…
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In this episode, Dr. Morris Salem, a pediatric cardiologist, discusses his involvement with Camp del Corazon, a camp for children with congenital heart disease. Dr. Salem emphasizes the importance of addressing the emotional well-being of these patients, in addition to their physical health. He believes that the camp helps boost their self-confiden…
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Episode 458 - Brittany Valim
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In this episode, Brittany Valim shares her experience with pulmonary hypertension and her journey towards a heart and double lung transplant. She now lives a fulfilling life as a mother, student, and aspiring nurse. Brittany encourages others to embrace life and ride the wave, appreciating the rarity of their experiences. Learn more about pulmonary…
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(Rerelease from 2/21/2023) Anti-Black Discrimination in Radiology
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Dr. Refky Nicola interviews Dr. Julia Goldberg about her recently published RadioGraphics article titled "How We Got Here:The Legacy of Anti-Black Discrimination in Radiology" How We Got Here:The Legacy of Anti-Black Discrimination in Radiology. Goldberg et al. RadioGraphics 2023; 43(2):e220112. Invited Commentary: From Unacceptable to Intolerable.…
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Episode 457 - Cam Wells
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In this episode, stroke survivor and journalist, Cam Wells, discusses his mission to change the way disability stories are portrayed in the media. Cam also discusses his work in the disability community, including his involvement with the Italian Canadian HandiCapable Association, which provides sports and recreation opportunities for people with d…
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Harm Bogaard, MD, Ph.D., FAHA is a pulmonologist at the Amsterdam UMC. In this episode, he discusses the use of magnetic resonance imaging (MRI) in monitoring pulmonary hypertension patients. Dr. Bogaard explains that MRI is a valuable tool for assessing the function and structure of the right heart, which is crucial in determining the prognosis an…
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Host Dr. Jonathan Revels highlights Cases from the Cooky Jar - check out two of these informative cases from RadioGraphics Pulmonary Light-Chain Deposition Disease. David E. Sweet, C. Austin Wheeler, Ciléin Kearns and Kaitlin M. Marquis. RadioGraphics 2022; 42:E145–E146. Intracardiac Echinococcosis. Maximiliano Klug, Antariksh Vijan, Pegah Khoshpou…
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Episode 455 - Dawn Clarke
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Pulmonary hypertension patient, Dawn Clarke, a resident of the Mississaugas of the Credit First Nation in Southern Ontario. Despite her rare disease diagnosis, Dawn decided to focus on her mental health and explore her creative passions. She emphasizes the importance of looking after all aspects of one's well-being, including physical, mental, emot…
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Episode 454 - Linda Wimmer
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New Jersey patient, Linda Wimmer, shares her experience with idiopathic pulmonary arterial hypertension. Linda discusses the various medications and lifestyle changes she has had to make to manage her condition. She also mentions dealing with depression and anxiety, as well as the challenges of accepting help from others. Learn more about pulmonary…
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Knee MRI: Meniscus Roots, Ramps, Repairs, and Repercussions
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Dr. Jennifer Weaver summarizes the article "Knee MRI: Meniscus Roots, Ramps, Repairs, and Repercussions" published online June 29, 2023 in the RadioGraphics journal. Knee MRI: Meniscus Roots, Ramps, Repairs, and Repercussions Tomsan et al. RadioGraphics 2023; 43(7):e220208.
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Episode 453 - PHenomenal Hope 2023
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In this episode, Drs. Patricia George and Harrison "Hap" Farber from Team PHenomenal Hope discuss takeaways and learning from PHenomenal Hope 2023. This symposium offered a combination of oral presentations, expert panel discussions, and poster sessions in an environment that encourages collaboration and a deeper exploration of patient-centered res…
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Episode 452 - Lia Barros, NP
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Lia Barros, a nurse practitioner at the University of Washington, discusses the role of nurse practitioners in caring for patients with pulmonary hypertension. She emphasizes the importance of nurse practitioners in meeting the unique needs of patients with pulmonary hypertension and suggests that adopting collaborative care models can improve pati…
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RadioGraphics Update: Lung-RADS 2022
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Podcast host Dr. Jonathan Revels summarizes the recent chest imaging RadioGraphics update article about Lung-RADS 2022. RadioGraphics Update: Lung-RADS 2022. Martin et al. RadioGraphics 2023; 43(11):e230037.
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Dr. Sam Rayner is an assistant professor and pulmonary hypertension specialist at the University of Washington. In this episode, he discusses the different ways physicians can get involved in pulmonary hypertension research. He explains that he is a physician scientist, dividing his time between patient care and scientific research focused on PH. L…
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Episode 450 - Harm Bogaard, MD
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Harm Bogaard, MD, Ph.D., FAHA is a pulmonologist at the Amsterdam UMC. In this episode, he discusses the role of genetic testing in the treatment of patients with pulmonary hypertension at its role in clinical research. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cur…
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Six years ago, Canadian pulmonary hypertension patient Sharon Tokonitz was rushed to the hospital with a massive bilateral unprovoked pulmonary embolism. She discusses her road to recovery from being bedridden to returning to an active life thanks to pulmonary rehab. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrial…
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Episode 448 - Saire Gonzalez, RN and Kimberly Hudson, RN
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Kimberly Hudson and Saire Gonzalez are registered nurses with CVS Specialty Pharmacy who work with patients with pulmonary hypertension (PH). They provide support, education, and guidance to patients who are newly diagnosed with PH and help them navigate their drug therapies and lifestyle changes. They also highlight the role of caregivers and the …
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Interview with Dr. David DiSantis
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Host Dr. Refky Nicola interviews RSNA 2023 Outstanding Educator Award: David J. DiSantis, MD live at the RSNA Annual Meeting 2023. Outstanding Educator Award: David J. DiSantis, MD
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In this episode, Dr. Raymond Benza, a Professor of Medicine at the Icahn School of Medicine at Mount Sinai, discusses dual therapy in the treatment of pulmonary hypertension (PH) through the concept of risk stratification. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a …
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Episode 446 - Nancy Halnon, MD
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In this episode, pediatric cardiologist, Nancy Halnon, MD, discusses treatment goals for pulmonary hypertension, the various routes of administration and the importance of using combination therapy to improve survival. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure…
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Episode 445 - Angela Bates, MD
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In this episode, Angela Bates, MD from Stollery Children’s Hospital, discusses the importance of incorporating quality of life into the management strategies for pediatric pulmonary hypertension patients. Dr. Bates also talks about the importance of allowing patients to engage in activities they enjoy, even with limitations imposed by their conditi…
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Episode 444 - Vinicio de Jesus Perez, MD
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17:59
In this episode, Vinicio de Jesus Perez, MD discusses some of the most recent clinical developments in the field of pulmonary hypertension, highlighting new and ongoing clinical trials that are of great interest to the medical community as well as caregivers and patients looking forward to novel ways of treating their condition. Learn more about pu…
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Multimodality Imaging of Dementia
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Guest host Dr. Gagandeep Choudhary summarizes the article “Multimodality Imaging of Dementia: Clinical Importance and Role of Integrated Anatomic and Molecular Imaging” focusing on pathophysiology and imaging findings of some of the major neurodegenerative processes. Multimodality Imaging of Demen-tia: Clinical Importance and Role of Integrated Ana…
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Episode 443 - Peter Leary, MD
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In this episode, Peter Leary, MD talks about factors that might lead to over-treatment, under-treatment, or "just-right" treatment and emphasizes that guidelines are important but there is no "one-size fits all" approach to treatment of pulmonary hypertension. Peter Leary is the director of the pulmonary vascular disease program at the University o…
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Episode 442 - Sanjay Mehta, MD
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In this episode, PHA Canada Board Director, Sanjay Mehta, MD discusses the recently updated 2022 ESC/ERS Guidelines for the diagnosis and treatment of pulmonary hypertension, the gaps in understanding and the reasons why. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a c…
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Episode 441 - Karina Macias
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In this episode, pulmonary hypertension pediatric care partner, Karina Macias, discusses her son Tito's PH journey and why she dedicated her life to becoming a certified nurse assistant. Tito was named Stanford's Race Against PH 2023 Pediatric PH Courage Award recipient. #raceagainstph @phaatstanford Learn more about pulmonary hypertension trials a…
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Translating AI to Clinical Practice
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Guest host Dr. Shahriar Faghani talks about an article published in the journal entitled Translating AI to Clinical Practice: Overcoming Data Shift with Explainability. Translating AI to Clinical Practice:Overcoming Data Shift with Explainability. Choi et al. RadioGraphics 2023; 43(5):e220105.
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Episode 440 - Mitesh Thakrar, MD
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Mitesh Thakrar, MD is a Clinical Associate Professor at the University of Calgary and the current Deputy Medical Director of the Southern Alberta Transplant Program. In this episode, Dr. Thakrar discusses titration of pulmonary arterial hypertension therapeutics. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. F…
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