Podcast by Rare Candy
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RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.
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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
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Revolutionary War Rarities is fast, fun, and rarely known history on the American Revolution. All PodCasts are 8-10 minutes long and are released every two weeks. Revolutionary War Rarities is the PodCast from the ”Sons of the American Revolution”. Please subscribe and let’s make history fun again. Thank you for joining us. #americanrevolution #revolutionarywarrarities #americanhistory #foundingfathers #revolutionarywar #sonsoftheamericanrevolution #rarehistory #americanrevolution
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We are a thriving church located in the pacific island of Rarotonga. On this podcast, you will find powerful preaching taken right from our church services. We will also be producing bonus content that is designed to help you live a life of breakthrough and make an impact for Christ! Subscribe and become a part of what God is doing!
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This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface fo ...
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We’re bringing you a slice of our lives through humor, tears, drama, games & pop culture, where trying to stay on topic is only half the fun! Join us!
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RaRa Raadio toob sinuni saated, mis haaravad endaga kaasa, ärgitavad mõtlema ja kergitavad suunurki ülespoole. Usume, et leiad siit mõtteid, mis teevad sind rikkamaks inimeseks.
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Fighting sarcoidosis as well as other rare diseases.
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Host Josh Mills brings together a wide variety of adult children of celebrities for a fun, funny, bizarre, jaw-dropping, strange and wonderful look behind celebrity, by the people that know them best: their very own children.
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Bienvenidos al Podcast de Cinoscar & Rarities, espacio del blog de cine Cinoscar & Rarities. Reseñas, estrenos, festivales, noticias, especiales y todas las novedades del séptimo arte. Podcast dirigido por @CinoscaRarities y @CineAmateur http://cachecine.blogspot.com.es/
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Welcome to the Dream Rare Podcast! An audio experience aiming to lift you up, make you laugh & help you get healthier all while bringing you some of the best news analysis on Earth.
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Young women have been growing up with an indoctrination of what womanhood is and what it should be. They've been taught everything that is in direct opposition to the Word of God. Young women who want to be different from the world are rare but they are real. Audrey Broggi will often be joined by her daughter and her daughters-in-law who desire to be discerning in a day when everything seems to go against God's design.
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Welcome to A Podcast of Rare Antiquities! Host’s Harry and Geoff discuss and analyze film and television shows. This podcast mainly delves into more obscure and forgotten films but latest releases are sometimes covered. We hope this is the rare antiquity you are looking for.
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Parenting tools and life hacks for raising a child with a rare diagnosis. Let’s get to the meat of it!
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Hosted by Dan Cleary, RFR is a comedy podcast that aims to be just that; in rare form. Sex, race, religion, conspiracy, controversy... nothing is off limits! The faint of heart need not apply. Follow us on Instagram & Twitter: @RareFormRadio - subscribe wherever you get your podcasts - Give us a rating & review if you'd be so kind.
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Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and everything in between as they live their best, rare, lives! For show notes, go to rarewithflair.com
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Continuous mixes of deep house, 90s hip hop and other groovy goodness...
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En esta serie mensual entrevistamos a pacientes, familiares, científicos, investigadores y líderes hispanos en el mundo de las enfermedades raras, para que nos compartan sus historias, alegrías, desafíos y aprendizajes. Acompáñanos a compartir estas historias, desde la odisea del diagnóstico (¡hablando un idioma diferente!) a los conceptos erróneos en nuestra comunidad. Hablaremos de la diversidad cultural en los países de habla hispana e intentaremos comprender mejor los diferentes factores ...
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Welcome to the Rare Cuts Media Society! A Book Club Style show where we dive into Movies, TV, Books, Music, and more. Each month one of us will choose a new piece of media to dive into and discuss. Make sure you watch, listen, and read along with us each month so you will be ready for our discussion. Warning: There will be Spoilers!
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siraman rohani ala rarrizi
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Welcome to P4A Let’s Talk Rare, a monthly podcast highlighting the most important developments in the world of rare diseases orphan drug, cell and gene therapy, hosted by Georgie Rack and Owen Bryant of Partners For Access. To find out more about Partners For Access and our commitment to sustainable orphan drug access for patients with high unmet need, visit partners4access.com
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Dive deep into the fascinating world of rare books with Rare Book Chat. Hosted by Michael DiRuggiero and Jeremy O'Connor, the co-founders of The Manhattan Rare Book Company, this podcast explores the unique and often valuable items that fill the world of rare books, manuscripts, letters, photographs, archives, and more. From historical documents to literary first editions, we'll discuss the stories behind these one-of-a-kind treasures. Join us as we explore the intricacies of the rare book t ...
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Intro,obrolan
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This podcast is about rare and wonderful creatures that are at risk of disappearing and the amazing people working hard to save them! Have you ever wanted to know why they call the Loggerhead Shrike the Butcher Bird? Have you wondered where have all the bats gone? Or asked yourself what is being done to protect the creatures that can’t stand up for themselves? Well this is the podcast for you!
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Escape The World Thru MusiQ.
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Conversations started by The Whitworth Group
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Formerly Nutrition Equity, rare connection is an extension of the podcast to include all 10,000 rare conditions and not just those covered by the Medical Nutrition Equity Act. Some of the conditions may be the same, but I am trying to turn this into a learning experience for those in the medical feild, policy leaders, and those who are just interested in hearing about rare conditions and patient stories. Rare conditions are called zebras hence the zebra striped ribbon. More common conditions ...
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Wait How Do You Spell That? is a rare disease podcast produced by Patient Worthy. We talk about issues affecting people rare and underdiagnosed conditions and interview advocates from across the community. We‘re definitely not doctors, and we can‘t give you medical advice. We‘re just here to chat and learn about the diseases that even doctors can‘t seem to spell. Check out the latest in rare disease news at PatientWorthy.com.
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Somos tu podcast favorito donde hablamos de todo lo curioso, extraño y fascinante que el mundo tiene para ofrecer. Desde misterios sin resolver hasta historias extraordinarias, ¡aquí encontrarás de todo! 🔍 ¿Qué encontrarás en nuestro podcast? Análisis de fenómenos inexplicables. 🎧 ¡No te pierdas ni un episodio! Suscríbete para estar al tanto de las últimas publicaciones y únete a nuestra comunidad de exploradores de lo desconocido. ¡Únete a nosotros en esta aventura y descubre las varas más ...
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We are in an Acura in a park we came to do yoga but it wasn’t here, so we started talking about stuff in the parking lot.
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Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The progno ...
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Welcome to Joslyn Rardon, where amazing things happen.
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Caden Rardon Interviewing Chauncey Rardon about his coaching experience
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TIXTO son capsulas de tecnología aplicada a la evangelización, su productor y locutor es Roberto Arias (@bettocr) de RARComputacion.com
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I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
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New Simplicity Channel. Robert Bonet's Music No Published
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Facts are facts if you would like to share your story or be apart of the podcast email me at 1allmostrare@gmail.com
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Whether you want the latest release or something more classic, there's sure to be something for everyone. And with no registration or fees required, it's easy and affordable to get started. So kick back, relax, and enjoy the show!
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Patient Empowerment Program: A Rare Disease Podcast
n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen)
Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply t ...
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Podcast by rarebirdlit
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Hai. Aku Rara. Aku seneng banget baca buku. Hehe aku pengen buat episode hal-hal menarik dari buku-buku yang ku baca. Ohya dan juga bisa jadi episode isi dari suara hatiku. Jadi ga melulu tentang buku yaaaa
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Funny in Spanish Cover art photo provided by Nahil Naseer on Unsplash: https://unsplash.com/@nahilnaseer
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Welcome to the VeryRarePodcast
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Welcome to the new Rare Kidney Disease Show part of the RKD Scientific Network sponsored by Travere Therapeutics. The Rare Kidney Disease Show is your primary source for cutting-edge insights, expert perspectives, and pivotal updates in nephrology. Led by our panel of experts, explore the advances in glomerular nephropathies through compelling conversations, challenging case studies, and discussions tackling hot topics. Join us as we strive to provide you with the ultimate resource to suppor ...
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Every beginning carries within it the seed of its own destruction.
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For fans of the Rutgers University Scarlet Knights.
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El mejor podcast para discutir cualquier vaina rara; que en Venezuela y el mundo, son muchas.
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Conozcamos qué son las Enfermedades Raras y porque difundimos sobre ellas!
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Glen and Psi talk about Ye's controversial new single, clinical trials, Tom Cruise, The Pope, and more For Premium Rare Candy Episodes and Written Content rarecandy.substack.com/ Follow Rare Candy on all platforms and remember to Rate/Review/Subscribe wherever you listen to us beacons.ai/rarecandy
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170: An Interview With Joyce Kullman, Executive Director of the Vasculitis Foundation
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12:09Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Joyce Kullman, executive director of the Vasculitis Foundation, duirng Vasculitis Awareness Month.Rare Care Podcast által
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169: An Interview With Chris Lewis, Son of Famous Comedian Jerry Lewis
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13:35Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Chris Lewis, whose father, Jerry Lewis, was not only among the most famous comedians of the 20th century but also a tireless advocate for people with muscular dystrophy.Rare Care Podcast által
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190: Colleen’s Story | Epilepsy, Brain Surgery, + Rage Hiking
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39:04Sometimes the only place big enough for the weight you’re carrying is the side of a mountain. That’s where Colleen—and dozens of other moms—learned how to let it out. In this episode, Colleen tells the story of her son Owen’s explosive onset epilepsy, her family's long search for answers, and the brain surgery that changed everything. She opens up …
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170: An Interview With Chris Lewis, Son of Famous Comedian Jerry Lewis
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13:35Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Chris Lewis, whose father, Jerry Lewis, was not only among the most famous comedians of the 20th century but also a tireless advocate for people with muscular dystrophy.Rare Care Podcast által
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#351 - Waxing the Pope
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1:10:12#351 - Moment of silence. “Me too. Same here.” Mail day from a fan. Pelvic floors are cool. Miracle baby. Vegas gig.
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Movie - Clear Lake (2012)
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1:00:16Part 4 of Rowdy Roddy Piper In this installment, your hosts Andrew, Rob, Mike Ross, and Eric set out to unearth another hidden media gem—this time diving into the lesser-known corners of wrestler-turned-actor Roddy Piper’s film career. With Mike’s pick of the episode, the group shifts focus to the independent Canadian film "Clear Lake" (2012), refl…
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Northern Spotted Owl: Messengers of the Old Growth Forests
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42:32In this episode of Rarefied, host Meredith Meeker talks with Jasmine McCulligh (she/her), the facility coordinator at the Northern Spotted Owl Breeding Program. They discuss the critical situation of the Northern Spotted Owl, its unique reliance on old growth forests, and the significant challenges it faces from habitat loss and competition with Ba…
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Improving Outcomes for People with a Set of Rare Cancers
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22:09Biliary tract cancers are a group of rare cancers with limited treatment options and generally poor outcomes because most patients are diagnosed at an advanced stage. There are efforts to address that through the development of early detection tools. And the use of biomarker testing can today match as many as half of these patients to a targeted th…
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10x43 - SERIES: Adolescencia, The White Lotus, Dying for sex, Matlock, Infiel, Último acto y Karma
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50:41Raúl Artiaga y Xavier Vidal reseñan sin spoilers las últimas series y miniseries de estreno. Hablamos de "Adolescencia", "The White Lotus T3", "Dying for sex", "Matlock", "Infiel", "Último acto", "Karma" y "De estrella del rock a asesino". ¡Gracias por darle al play! Redes sociales: @CinoscaRarities Blog: https://cachecine.blogspot.com.es/ Correo: …
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Episode 52: Real Genius (1985)
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1:52:32Val Kilmer and company make all the grades while breaking all the rules, but are the smart enough to save the world? Listen to Geoff and Harry dive deep into the weeds of the movie, Real Genius. #APodcastofRareAntiquities #ValKilmer #RealGenius #moviereviews #obscuremoviesA Podcast of Rare Antiquities által
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Our Bodies Belong to God
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40:55This is the second in a series about our bodies. When we understand that God owns our bodies, it makes all the difference in the world! This understanding affects how we take care of them in this life - what we eat, what we drink, how we exercise, what we wear - even to the products we use like makeup and skincare. Why? Because our bodies belong to…
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Episode #234: Howard Murray (Jan Murray) (Part Two)
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1:15:58Today on Part two of our conversation with Howard Murray, son of comedian Jan Murray, we find that like the Passover holiday that just ended a few weeks back, this one is full of both Maror and Charoset. Meaning, this episode is full of both the bitter and the sweet. Jan was kind enough to tell us some very funny details about his family’s annual S…
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Truly Transformed
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1:00:09Zachary Cargill unpacks the difference between empty religion and a transformed life in the Kingdom of God. He challenges us to go beyond outward behaviour change and allow true transformation by the Holy Spirit. A religious spirit focuses on external appearances but the Kingdom calls for a renewed mind and a transformed heart. It’s time to move be…
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Hippie Hunting w/ Sascha Ciezata
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1:13:57Writer/Illustrator Sascha Ciezata joins Glen to talk about his new graphic novel "The Hippie Hunter", Thomas Pynchon, Laurel Canyon, Tate-Labianca murders, California, Hippie Culture, Covid, and more Support The Hippie Hunter https://www.indiegogo.com/projects/the-hippie-hunter-by-sascha-ciezata#/Get Volume 1 of The Hippie Hunter https://www.amazon…
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Dr. Richard Channick, dives into the evolving world within pulmonary hypertension -- interstitial lung disease (PH-ILD). He sheds light on why early diagnosis matters and how new therapies are transforming care. Learn about the latest FDA-approved treatment and what’s on the horizon. This Special Edition episode is sponsored by Gossamer Bio and Pul…
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Familial Adenomatous Polyposis With Jenny From Oklahoma
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40:10Send us a text In this milestone 50th episode of Rare Connection, host Joanna sits down with Jenny, the powerful voice behind the blog Life’s A Polyp. Diagnosed with Familial Adenomatous Polyposis (FAP) as a child, Jenny underwent a total colectomy at age 9, followed by a series of life-threatening complications that led to multiple surgeries, an i…
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An Effort to Build a Better DMD Gene Therapy
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27:32Drug development activities focused on the rare, neuromuscular condition Duchenne muscular dystrophy have translated into functional improvements and an extension of life expectancy. Regenxbio is among several companies pursuing a gene therapy to treat Duchenne. Regenxbio believes both its microdystrophin—a truncated form of the dystrophin gene sm…
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#350 - Gnashy Blowfish
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1:16:22#350 - We’re on the road again (kinda). Throuple resume. Sheets Day. Hello Bidet. Coachella & AC/DC. Crosswalk talk. Listener question. We play a new game! The Place is Right!
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189: Grief in Disability Parenting | What it is, Why It’s There, + How to Process It w/ Amanda Griffith-Atkins
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55:35Grief around our children’s disabilities can take many forms. Some of us are grieving the life we thought we’d have with our child that looks so very different now. Others of us are grieving the very real possibility of losing them too soon. In this episode, therapist and fellow disability parent Amanda Griffith-Atkins joins me to talk about the co…
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Southwest Spring Firefly: The Gateway Bug
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42:21In this episode of Rarefied, host Meredith Meeker introduces listeners to the Southwest Spring Firefly, an understudied species primarily found in Arizona. Joined by Rachel Laura, Deputy Executive Director at Friends of the Verde River and a PhD student at the University of Arizona, the episode dives into the unique characteristics, life cycle, and…
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10x42 - Especial 78º FESTIVAL DE CANNES 2025
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1:11:35Dionar Hidalgo y Xavier Vidal comentan las películas del FESTIVAL DE CANNES 2024. Repasamos la sección oficial, Una cierta mirada, Quincena de realizadores, Semana de la crítica y proyecciones fuera de concurso. Todo sobre el festival francés, en nuestro pódcast. ¡Gracias por darle al play! Redes sociales: @CinoscaRarities Blog: https://cachecine.b…
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Gain of Fiction vol. 56 - Prey w/ J David Osborne
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2:00:02Author J David Osborne joins Glen and Psi to talk about his new book God's Fare No Better and discuss Michael Crichton's anti-girlboss, nanorobot swarm, techno-thriller novel Prey (2002). If you like this episode, become a premium subscriber of the RC substack to get access to the entire Gain of Fiction archive as well all RC premium content https:…
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168: An Interview WIth Lisa Butler, CEO of the GBS-CIDP Foundation
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12:34Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lisa Butler, CEO of the GBS-CIDP Foundation, on what her organization is doing for patients with chronic inflammatory demyelinating polyneuropathy (CIDP).Rare Care Podcast által
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A Prank Inscription, Bloody Relics, and Harry Potter Unbound
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30:09All about a book that was not inscribed by Calvin Coolidge to Ernest Hemingway, the gloves Lincoln wore the fateful night of the assassination, and a marvelous Harry Potter curiosity... Enjoy!Jeremy O'Connor and Michael DiRuggiero által
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What makes antisense oligonucleotides (ASOs) so special? Let’s first understand what an oligonucleotide is. An oligonucleotide is a short strand of synthetic DNA or RNA (a nucleic-acid chain), usually consisting of up to approximately 20 nucleotides long—designed to bind with specific sequences in the body. At n-Lorem, our ASO technology is built o…
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It Has Been a Minute... Or Two
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27:59Flexibility is critical when talking about raising a child with a rare disease. It has been a long time friends. The Raising Rare Team has been dealing with a number of challenges since Season 5 ended. As a result, we have not been able to reconnect and publish an episode until now. We are so glad that you came back! In our Season 6 Opener, we talk…
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Desde Cuba a Cleveland, Ohio: Hablando de epilepsias genéticas y del síndrome CDKL5 con la Dra. Elia Pestana Knight
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38:30Si quieren aprender más sobre las epilepsias genéticas y en particular del síndrome CDKL5, no se pueden perder este episodio de Mas Que Raras. La Dra. Elia Pestana, quien actualmente trabaja en el Cleveland Clinic Neurological Institute, nos lleva desde sus inicios en la Havana, Cuba hasta los Estados Unidos. Como su historia personal la llevo a qu…
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S3 EP9: The Roommate from Hell
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54:25Send us a text From CRAZY roommates to sparkly engagement rings to prison breakups, nothing is ever just normal for THIS frequency! Join us as the original trio FINALLY reunite for more catching up and foolery!Rare Frequency által
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hi hello hey, let’s go to the doctor! It’s been a hot minute since we did an episode on chronic health, but we’re BACK and ready for action! On this episode, we’re diving into what it really means to be your own advocate in the healthcare system, especially when you have a rare disease and a vision impairment. From the constant parade of specialist…
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Do you see your body as God sees it? The way we view our bodies affects everything we do with and to them – from the food we eat and don't eat - to the exercises we do - to the skincare, makeup, the clothes we wear, and even to the clothes we don't wear. This week's podcast is the first in a few episodes looking at God's view of our bodies. I hope …
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Episode #233: Howard Murray (Jan Murray) (Part One)
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1:09:05Today on part one of the Rarified Heir Podcast we are talking to Howard Murray, son of comedian and actor Jan Murray. Our conversation with Howard was wide ranging and fun with a few poignant moments we did not see coming. Howard was an effusive and eager guest who really seemed to enjoy talking about his parents and how wonderful they were. This i…
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167: An Interview With MDA Patient Advocate Donavon Decker, WInner of the 2025 MDA Legacy Award for Community Impact in Research
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13:19Larry Luxner, senior correspondent for Rare Disease Advisor, talks to Donavon Decker, who has limb-girdle muscular dystrophy. Decker is the winner of the 2025 MDA Legacy Award for Community Impact in Research.Rare Care Podcast által
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Dr. Ioana Preston explores the emerging field of pulmonary hypertension associated with interstitial lung disease (PH-ILD). She discusses the growing recognition of PH-ILD, especially after the introduction of inhaled treprostinil as a treatment, and highlights the importance of early screening and diagnosis. Dr. Preston also delves into the challe…
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Improving Alignment In Drug Development
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36:35In the latest episode of Let's Talk Rare, Owen Bryant & Georgie Rack delve into the world of drug development in rare diseases. They are joined by the brilliant Rob Freishtat, president of Uncommon Cures. Rob brings unique insights on who the key stakeholder are in developing drugs and the many ways that we can bring them together in order to impro…
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Episode 137 | Dr. Brandon Moss of the Cleveland Clinic talks neuro sarcoidosis
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1:01:20
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1:01:20In this Episode of the FSR Sarc Fighter podcast, Dr. Brandon Moss, Director of the Neuro Sarcoidosis Clinic at the Cleveland Clinic, talks about the unique challenges of neuro sarcoidosis. Dr. Moss also happens to be my doctor. I've told him he can use my situation as a case study for the sake of this discussion. So you may hear a lot about my spin…
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From Researcher to Lymphocytic Colitis Patient Ben From South Dakota
1:29:05
1:29:05
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1:29:05Send us a text In this episode of Rare Connection, I sit down with Ben, a rare disease researcher and advocate with over 15 years of experience in cell and molecular biology, clinical research, and leadership. Ben shares his personal journey living with lymphocytic colitis and oral lichen planus—two often misunderstood conditions—and his profession…
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S3E21 "The Capture of Fort Ticonderoga"
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13:05
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13:05Today's episode of Revolutionary War Rarities was filmed at Dorchester Heights in Boston. Today we feature Dr. Matt Keagle, the Curator at Fort Ticonderoga. We discuss the capture of Fort Ticonderoga, the Noble Train of Artillery, and Evacuation Day of Boston by the British. All video of Fort Ticonderoga is copyrighted, but was provided by and used…
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10x41 - CINE DE TERROR: Los pecadores, La cita, Parpadea dos veces, La acompañante, The Monkey y Hombre lobo
23:35
23:35
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23:35Nuevo audio dedicado a la actualidad del cine de terror, con análisis de 6 estrenos sin spoilers. Incluye reseñas de "Los pecadores", "La cita", "Parpadea dos veces", "La acompañante", "The Monkey" y "Hombre lobo". Sin spoilers. Locución y montaje de Xavier Vidal. ¡Gracias por escucharnos! Redes sociales: @CinoscaRarities Blog: https://cachecine.bl…
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(Deep House) - April 2025 (Aries Spring Fling Mix - Part 2)
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1:01:30
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1:01:30House. Music. - All LIFE LONG
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(Deep House) - April 2025 (Aries Spring Fling Mix - Part 1)
1:01:21
1:01:21
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1:01:21House. Music. - All LIFE LONG.
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Temporada 5 Episodio 1: ¿La Muerte del Papa Francisco? Teorías y Profecías Impactantes
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59:15
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59:15En este episodio de Hablemos de Varas Raras Podcast, analizamos las teorías y profecías que rodean la supuesta muerte del Papa Francisco. ¿Qué dice la profecía del último Papa? ¿Quién es el Papa Negro? Acompáñanos a descubrir los secretos detrás de uno de los temas más controversiales del Vaticano.
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#348 - Hot, Dead & Homeless
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1:06:01
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1:06:01#348 - Love On the Spectrum is BACK. Throb’s athleticism being challenged again. Homeless love affair. Facebook deals. White Lotus finale & SNL fallout. Influencers is weird. Too expensive.
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Mini-episode: Why We Are Delaying Our Next Few Episodes w/ Alyssa Nutile
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21:35
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21:35For the first time in The Rare Life history... we need a little extra time to work on the next few episodes. Not because we haven’t been preparing and planning, but because some current events have thrown a wrench into the works. In this episode, Madeline and Alyssa talk generally about some of the recent events that have come up, how the community…
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Jefferson Salamander: Do a little dance
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41:41
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41:41In this episode of Rarefied the podcast, host Meredith Meeker delves into the intriguing world of the Jefferson Salamander, a rare and imperiled amphibian found in Ontario, Canada. Meredith is joined by Jessica Linton, a senior biologist and project manager at NRSI, who shares her expertise on the species' lifecycle, habitat, and the unique reprodu…
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A Once-Failed Pain Therapy Shows Potential in a Neurodevelopmental Disorder
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32:48
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32:48GRIN-related disorders are a group of rare neurodevelopmental conditions that can cause intellectual disability, behavioral challenges, and seizures. GRIN Therapeutics is developing a once-failed development candidate for chronic neuropathic pain, known as radiprodil, as a potential treatment for GRIN-related disorders driven by gain-of-function mu…
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Navigating the Patient's Journey featuring Brenda Snow
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57:59
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57:59Patient Worthy is humbled to speak to Brenda Snow, CEO and Founder of Snow Companies and now the bestselling author of 'Diagnosed: The Essential Guide to Navigating the Patient's Journey'. We discuss Brenda's own journey with Multiple Sclerosis and how she has turned it into a career and guidebook for others facing chronic diagnoses. You can find B…
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