Long Covid nyilvános
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A podcast dedicated to Long Covid. Noreen Jameel and Emily Kate Stephens talk to fellow sufferers, doctors and experts searching for answers about this new, debilitating post-viral condition. So if you are one of the millions suffering from, or interested in, this new condition - tune in to our weekly podcast.
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Long COVID Physio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with Long COVID and allies. We work internationally across advocacy, policy, guideline development and research. Our education outputs are for anybody living with Long COVID and people wanting to learn more.
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The Podcast by and for Long Covid sufferers. Long Covid is estimated to affect at least 1 in 5 people infected with Covid-19. Many of these people were fit & healthy, many were successfully managing other conditions. Some people recover within a few months, but there are many who have been suffering for much much longer. ​ Although there is currently no "cure" for Long Covid, and the thousands of people still ill have been searching for answers for a long time, in this podcast I hope to expl ...
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On this podcast I’ll be interviewing people who are suffering with Long Covid and asking them to share their very personal but compelling stories of how this illness has turned their lives upside down. My hope is to spread the word about Long Covid, educate the public and to help Long Covid sufferers to not feel so alone. There are an estimated 400 million Long Covid sufferers worldwide. It can affect individuals of all ages, from children to the elderly and everyone in between, including th ...
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This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only cons ...
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In diesem Podcast geht es um das chronische Fatigue Syndrom ME CFS, Long Covid, Fatigue und PostVac. Der Podcast gibt dem Schmerz eine Stimme, zeigt konkrete Hilfen auf und versprüht Hoffnungsfunken. Du hörst Interviews mit Betroffenen, Erfahrungsberichte von Genesenen, Expertengespräche mit Ärzten und Naturheilpraktikern und ganz viele Impulse, wie wir mit dieser chronischen Krankheit besser leben können und welche Therapieansätze es gibt. Auf https://www.fasynation.de/ findest du mehr Ress ...
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Katya and Hannah are young women and old friends who somehow both ended up with long covid. Hannah got sick first in March 2020, and, when Katya 'joined the club' (as Hannah jokes) in September 21, our friendship became a bit of a life support. Our regular phone calls in which we laughed and cried about our changing bodies and lives were such a source of comfort that, in September 2022, we decided to record them. Join us in this new series where we discuss the highs and lows of living a life ...
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Information about Long-Haul Covid by a Long Hauler and former Psychotherapist. If you are lucky enough to have avoided Long Covid, you probably know someone who has it. With the rise in cases of people around the world who are not recovering from this disease, information and research are in dire need. Here, we'll explore both my personal experiences and others', along with announcements of new research. Episodes are not designed to follow chronological order, so feel free to jump in the con ...
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Covid-19 Long Haulers - Long Covid Coronavirus ... IT ALL SUCKS!!! The REAL NAME for it: ”CHRONIC COVID SYNDROME” We are here to share our lived experience with the coronavirus; our expertise; our story and the stories of the MANY others directly and indirectly affected by Covid-19, including those on the front line of healthcare. Your hosts: Staci RN, PhD, professor of nursing; Doug Attorney, Physician Assistant, Entrepreneur. Together, we will, talk, share, interview, investigate and provi ...
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Deze podcast is ook te beluisteren in prikkelarme versie. De prikkelarme afleveringen vind je onder de reguliere afleveringen. Zeker tienduizenden Long Covid-patiënten kampen na de coronapandemie nog met ernstige klachten. Voor velen van hen loopt de weg in het ziekenhuis dood, er is namelijk nog geen behandeling gevonden die genezing biedt. Long Covid-patiënten zoeken daarom vaak hun heil bij alternatieve behandelingen. In wat voor wereld komen patiënten bij deze zoektocht naar genezing ter ...
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show series
 
Send us a Text Message. Episode 130 of the Long Covid Podcast is a chat with Dr Marco Leitzke who has been exploring the use of Nicotine Patches to help with Long Covid. We discuss what Nicotine is, why it can help and how this could be something incredibly useful. Links to Dr Marco's work & social media etc: https://linktr.ee/marcoleitzke A blog w…
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Zusätzlich zum Podcast können wir dir sehr das deutschsprachige Recharge-Programm von Kathi empfehlen. Du bekommst dadurch viele hilfreiche Impulse, die dir weiterhelfen. Auch kannst du dich mit anderen Betroffenen austauschen. Schau einfach mal rein: https://www.fasynation.de/recharge-programm/ . In dieser Episode erzähle ich etwas von mir wie es …
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David Cutler, Professor of Applied Economics at Harvard University, has spent his career assessing the economics of healthcare. Over the past four years he has applied his skills to assessing the cost of Covid, and subsequently Long Covid, on the U.S. economy. His original analysis, published in JAMA in 2022, suggested that Long Covid would cost th…
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In today's episode of the podcast I talk with my son Alexander. Alexander and I were talking some time ago, and he explained to me this concept of "safe space" which he had been thinking about. He explained he was developing and applying this to everyday life, but specifically to the salon he works in. He currently works at Rebecca Dickinson's salo…
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In which Hannah and Katya set out to discuss the impact that Long Covid has had on their identities, and briefly stray off topic to complain about periods and reminisce on university crushes. We want to hear about your experiences! What do you do with your bounded energy? Email: boundedenergy@gmail.com Twitter/Instagram: boundedenergy Transcripts a…
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Send us a Text Message. Episode 129 of the Long Covid Podcast is a chat with Lily Spechler, a registered dietitian who is working with people with Long Covid following her own experience with it. We chat through some of the trends she is seeing and some pointers for people to follow. Lily's Instagram: https://www.instagram.com/longcoviddietitian/ T…
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Send us a Text Message. Episode 128 of the Long Covid Podcast is a chat with Nigel McCracken, COO of Virax Biolabs & Sean Knight, Clinical research fellow at the University of Manchester. Nigel and Sean are working together in collaboration on a study to dive deeper into T-Cell exhaustion in people with Long Covid. We take a deep dive into T-Cells,…
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Dr Nancy Klimas, Director of the Institute for Neuro-Immune Medicine, Nova Southeastern University, is an immunologist internationally renowned for her work in multi-symptom illnesses. In this week’s episode she explains her work, from HIV through ME/CFS and Gulf War Syndrome, that has led to her having insight and an amazing team to channel effort…
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Send us a Text Message. Episode 127 of the Long Covid Podcast is a chat with Rachael Heath-Porsz about her recovery from Long Covid! We chat through her experience - the things that helped, the things that didn't and what life looks like now. We also chat a bit about what Rachael is doing now - helping people with Long Covid to return to movement i…
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As requested by those of you who follow me on social media, in this episode of the podcast I am sharing my experience so far, of using a fitted vagus nerve stimulator (VNS). I have aimed to answer all of the questions you guys asked me. I have given some information on the VNS, how it is fitted, what it does and how I am finding it at this point, i…
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Send us a Text Message. Episode 126 of the Long Covid Podcast is a chat with Joshua Roman - Cellist, Composer & Curator, as well as Longhauler. We chat through some of the things that he experienced, learned and some of the incredibly inspiring work he is now doing to help others with Long Covid as well as heal himself. Links: Joshua Roman Website …
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Dr Rob Wüst, Assistant Professor in the Faculty of Movement and Behaviour Sciences, is an expert cardiac and skeletal muscle metabolism and mitochondrial function. He and the team at Vrije Universiteit, Amsterdam, published the “PEM study” in Nature Communications, which investigated the muscular changes in Long Covid patients who experience post-e…
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Send us a Text Message. Episode 125 of the Long Covid Podcast is a chat with Peter Burt. Peter has found himself "washed up on a desert island" after floating around in the sea of Long Covid for a couple of years. We talk through a lot of fascinasting stuff, the idea of "not feeling like a man" and how difficult but extremely important it is to ask…
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Send us a Text Message. Episode 124 of the Long Covid Podcast is a chat with Dr Elizabeth So about East Asian Medicine. We take a deep dive into what EAM is and some of the background to it, as well as how it can help with conditions such as Long Covid - and why! This was such a fascinating discussion - we could have carried on for hours - and one …
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In this episode of the podcast I talk with Kevin Digby and Rachel Hext following the High court hearing on the 6th March 2024. Kevin is a partner at GA Solicitors and is representing nearly 70 healthcare workers with Long Covid taking the NHS and other employers to court. Many healthcare workers are living with the disabling consequences of Long Co…
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Dr Thomas Chelimsky, Professor of Neurology and Director of VCU’s autonomic laboratory, is a specialist in autonomic dysfunction and a vocal advocate for considering the mind and body as one cohesive system. He, along with his team at the VCU clinic, take a unique brain-body approach to treating Long Covid patients, with success. In this week’s epi…
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Send us a Text Message. Episode 123 of the Long Covid Podcast falls on Long Covid Awareness Day, and also 4 years since I first became unwell. This is my reflections on the last 4 years - Long Covid & beyond. I also did a video for youtube which might be of interest here Episode 94 - my recovery story Support the Show. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~…
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A short update from Katya & two new recommendations Visible band & app: https://www.makevisible.com/ Breathwrks app: https://www.breathwrk.com/ We want to hear about your experiences! What do you do with your bounded energy? Email: boundedenergy@gmail.com Twitter/Instagram: boundedenergy Transcripts available on our website: www.boundedenergy.co.uk…
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Send us a Text Message. Episode 122 of the Long Covid Podcast welcomes back the wonderful Professor Louise Cummings to talk about her follow-up study into the cognitive & linguistic difficulties in adults with Long Covid and also looking at employment outcomes for those people. This is a hugely enlightening discussion, covering a lot of information…
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Dr Andrew Klein, an anaesthetist at the Royal Papworth Hospital Cambridge, runs the Cambridge Iron Clinic where he treats people with Iron and B12 deficiencies. Since the start of Covid he has seen an increase in people with these deficiencies, many of whom have been diagnosed with Long Covid. In this episode Dr Klein talks us through the overlappi…
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Send us a Text Message. Episode 121 of the Long Covid Podcast is a chat with Fatigue Coach Pamela Rose about those difficult conversations that can come up time and time again. We chat through some of her experiences and how they have led her to be able to work with & help people. And we also dive into those difficult conversations - which ones ten…
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In this episode of the podcast, I am grateful to have two fantastic guests join me, Professor Louise Cummings is a professor at the Hong Kong polytechnic university, she conducts research on language and communication disorders and is the author and editor of over 20 books in this area. Kerry Davies is a returning guest, a fellow advocate and nurse…
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Send us a Text Message. Episode 120 of the Long Covid Podcast welcomes the wonderful Dr Mark Faghy back to the podcast for a long awaited catch-up on all the research he's been involved in at Derby Uni, but also info on the first anti-viral Long Covid clinical trial - in the UK, if not the world! https://www.derby.ac.uk/research/showcase/long-covid…
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Send us a Text Message. Episode 119 of the Long Covid Podcast is a fascinating discussion with Ewa Beldzik and Daniel Gomez about the Long Covid study they are doing involving MRI and mapping the brain during tasks. We dive a load into the study and it's absolutely amazing! A link to enroll in the study And their email for any questions: MGHLCOVID@…
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Over the last couple of weeks you may have seen in the news, Dr Fearnley and the group she co-founded Long Covid Doctors for action; If not, these are a group of doctors who have come together to take action against the NHS negligent work place exposure. They are being represented by Bond Turner. Today, I am fortunate to be able to talk with Kevin …
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Physiatrist Benjamin Abramoff, M.D. is the Director and Co-founder of the Post Covid Assessment and Recovery Clinic at the University of Pennsylvania, Philadelphia. An Assistant Professor in Physical Medicine and Rehabilition, Abramoff used his expertise to co-author the study, published in Cell, that found that serotonin depletion is prevalent in …
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Send us a Text Message. Episode 118 of the Long Covid Podcast is a chat with Dr Sarah Myhill about her experiences of working with people with ME/CFS and now Long Covid. We chat through her treatment protocol and some ideas to help that are practical & cheap - an important factor! Dr Myhill's website Books: - chronic fatigue book - paleoketogenic d…
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Send us a Text Message. Episode 117 of the Long Covid Podcast is a chat with the wonderful Leela O'Brien about her experiences with Long Covid and what she has learned about herself in the process. A big takeaway from this is the "what can we do" and that we don't need to wait to be healed before trying to find ways to enjoy life, even if they are …
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In which Katya & Hannah discuss black hole thoughts, the healing powers of time, and the emotional rollercoaster that is life with long covid / fibromyalgia. We want to hear about your experiences! What do you do with your bounded energy? Email: boundedenergy@gmail.com Twitter/Instagram: boundedenergy Transcripts available on our website: www.bound…
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On this episode of the podcast I discuss invisible disability, and how a Ted talk I recently had sent to my inbox, had such an impact on me. I watched the Ted talk and could relate to Dr Amrita Sen Mutherjee experience of living with her own invisible disability. I resonated with her experience of having her condition diagnosed, and the subsequent …
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Send us a Text Message. Episode 116 of the Long Covid Podcast is a chat with the fabulous Dr Claire Taylor. We take a dive into her previous experience which led her to Long Covid, and also to some of the common trends & useful strategies she is seeing with her patients. Claire Taylor Twitter Claire Taylor Website Claire Taylor Instagram For more i…
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Tim Henrich is a Professor of Medicine and expert in infectious diseases, focused on chronic viral infections at the University of California, San Francisco. He is another member of the titan Long Covid research team who have tracked patients since the beginning of the pandemic (LIINC study) and are making roads into understanding the mechanism of …
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Happy new year to everyone, this is the first podcast of 2024 and I will be honest it has no structure at all, but then that was the point! I wanted to talk today about how not everything is or can be structured, how the general consensus is "new year new me", but that is not always realistic and just becomes an added pressure and expectation. I ex…
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Send us a Text Message. Episode 115 of the Long Covid Podcast welcomes back CEO of Dysautonomia International Lauren Stiles to chat about research into Dysautonomia, and how this is relevant to Long Covid. This is a fascinating discussion, which dives back into research pre-Covid that is (or should be) informing research happening now. We also take…
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A supplement to Episode 68 - Consultant Neurologist Steven Allder of Re:Cognition Health discusses the way that injury to the brain causes anxiety and depression in Traumatic Brain Injury and could explain some of the mental health impact of Long Covid. Living with Long Covid? How was your week? Website - https://www.tlcsessions.net/ Twitter - @Ses…
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A supplement to Episode 68 - Consultant Neurologist Steven Allder of Re:Cognition Health explains what tinnitus is and why we are experiencing it in Long Covid. Living with Long Covid? How was your week? Website - https://www.tlcsessions.net/ Twitter - @SessionsTlc https://twitter.com/sessionstlc Insta - @tlcsessions https://www.instagram.com/tlcse…
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